AAMDSIF Joins Coalition Urging the Administration to Preserve our Nation’s Newborn Screening Program | Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

AAMDSIF Joins Coalition Urging the Administration to Preserve our Nation’s Newborn Screening Program

Original Publication Date: 
Tuesday, May 6, 2025
Article Source: 
Coalition Action

A coalition of 272 organizations signed a public letter to the Secretary, Department of Health and Human Services, addressing the decision to eliminate the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC).  While each state may add on additional screenings, this Committee ensured standardized measurements and procedures, to endure early detection of newborn conditions.

AAMDSIF signed the letter, attached below, to endorse maintaining the Advisory Committee on Heritable Disorders in Newborns and Children.

AttachmentSize
PDF icon Newborn_Screening_Coalition_Letter_FINAL_2025May5.pdf108.65 KB

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