Steven C. Groft, Pharm.D. | Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Steven C. Groft, Pharm.D.

Position / Title: 
Director of the Office of Rare Diseases (ORD), National Institutes of Health (NIH)
Award Year: 

Dr. Groft has been focusing attention on rare and orphan diseases like bone marrow failure. His leadership and vision have brought neglected and little known diseases into the spotlight to help garner clinical attention and financial resources for research. All told, 25 to 30 million people in the United States have a rare disease, millions more are caring for a loved one with a rare disease and millions more as employers and friends are impacted. Highlights of his work include time at the Food and Drug Administration in the Office of Orphan Products Development and at the Department of Health and Human Services as Executive Director of the National Commission on Orphan Diseases. 

Leadership Award Type: