Social Media – Transforming the Way We Communicate
Social media tools help you interact with the entire bone marrow failure disease community–patients, families, healthcare providers, and researchers–in significant ways. These online communication channels also help us reach patients who might not know about our programs and services.
Now is the time to get social!
Using social media, you can find information, opinions, and advice from AA&MDSIF, the research and healthcare communities, and other patients. Getting answers can be as simple as following and engaging us on Twitter, starting or joining a conversation with a question or comment on our Facebook page, and follow us on Instagram!
Other Social Media
Marrowforums: A free online forum where aplastic anemia, MDS, and PNH patients, caregivers, and family members can find each other, make personal connections, and trade information and support.
PNH Support Forum: This online forum provides support by sharing the personal experiences of the members who have or care about someone with PNH. To join, email info@pnhfoundation.org for instructions.