Symptom Tracker
Form to record symptoms or reactions to treatment and medications that can be shared with health care providers
living with disease
My Healthcare Team
Chart to record medical professionals, pharmacy contacts, patient support organizations and others involved with your health care.
Preparing for Medical Visits
Guidelines and suggested questions for making the most of your health care appointments.
Managing Side Effects of Treatment
Summary of the common side effects of aplastic anemia treatments and tips for managing them.
Transplant Patient Card
Emergency health information card for patients who have received a transplant.
Non Transplant Patient Card
Emergency health information card for patients who have not received a transplant.
Instructions
Not all healthcare professionals or emergency responders will understand your rare diagnosis and unique needs. AAMDSIF has created an emergency health information card that communicates to others what they need to know…
10th International Bone Marrow Failure Disease Scientific Symposium
Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
The 10th International Bone Marrow Failure Disease Scientific Symposium will convene physicians, laboratory researchers and clinical investigators to discuss current areas of consensus and controversy, share recent research results, and clarify promising directions for…
EHA and ASCO 2021 - Aplastic Anemia and PNH for Patients
This publication offers summaries of selected abstracts presented at the 2021 Meetings of the European Hematology Association (EHA) and the American Society of Clinical Oncology (ASCO). It provides new and updated…
EMPAVELI Fact Sheet
What is EMPAVELI®? EMPAVELI® (previously known as pegcetacoplan) is the first PNH treatment that binds to complement protein C3. It is approved by the Food and Drug Administration for adult patients with paroxysmal…