Active Middle-Schooler's Life Sidelined by Severe Aplastic Anemia - Phoenix's Story
Cheer, music, sports, plays, community. These dominated Phoenix’s life in the autumn of last year.
diagnosis
What is PNH? Recorded Session from the 2025 San Francisco Bay Area Patient and Family Conference
Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Bart Scott, MD
Learn from Dr. Bart Scott in this recorded session. Find out all the symptoms and science for a diagnosis of PNH, or Paroxysmal Nocturnal Hemoglobinuria to answer your most pressing questions.
Expert Panel - Pediatric Bone Marrow Failure - 2025 San Francisco Bay Area Conference
Topic(s)
Pediatric Bone Marrow Failure Diseases
Presenter(s)
Anju Goyal, MD
Satheesh Chonat, MD
Rajni Agarwal, MD
Jessie Alexander, MD
Marcin Wlodarski, MD, PhD
The Pediatric Hematology/Oncology Experts answer questions from the audience at the 2025 San Francisco Bay Area Patient and Family Conference.
Inherited Bone Marrow Failure - Pediatric Patients - 2025 San Francisco Bay Area Patient and Family Conference
Topic(s)
Pediatric Bone Marrow Failure Diseases
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Presenter(s)
Jessie Alexander, MD
Rajni Agarwal, MD
Which bone marrow failure diseases can be inherited? Why? How? Find the answers to these questions and more in this recording from the 2025 San Francisco Bay Area Patient and Family Conference.
Pediatric MDS - Session from the 2025 San Francisco Bay Area Patient and Family Conference
Topic(s)
Pediatric Bone Marrow Failure Diseases
Myelodysplastic Syndromes (MDS)
Presenter(s)
Marcin Wlodarski, MD, PhD
Dr. Marcin Wlodarski explains diagnosis and treatment for pediatric patients with MDS, or Myelodysplastic Syndromes.
Pediatric PNH - from the 2025 San Francisco Bay Area Patient and Family Conference
Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Satheesh Chonat, MD
Dr. Satheesh Chonat explains the presentation of PNH, or Paroxysmal Nocturnal Hemoglobinuria, in children as well as its treatment.
Pediatric Aplastic Anemia - 2025 San Francisco Patient and Family Conference
Topic(s)
Aplastic Anemia
Presenter(s)
Anju Goyal, MD
Dr. Anju Goyal explains Aplastic Anemia and answers questions from the audience.
Nutrition for Patients with Aplastic Anemia, MDS, or PNH
Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
In this webinar, Kylie Chen, Registered Dietitian, discusses common nutrition challenges and evidence-based strategies to improve nutritional status and learn easy nutrition swaps.
Marching Through MDS: Veterans and the Battle Against Myeloid Neoplasms
Topic(s)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Christin DeStefano, MD, FACP
Drew A. Helmer, MD, MS
In this webinar, Drs. Christin Destefano and Drew Helmar discuss the link between military toxic exposure and hematologic malignancies.
Allen’s Journey with Aplastic Anemia, Part 1
Allen had a gratifying life. He had a wife and a two-year-old, living on a farm, working in the Post-Anesthesia Care Unit at the teaching hospital. He exercised, ran, hiked, hunted, fished, and more, enjoying the outdoors, his family, and his career.
In January, he had the worst case of the flu he had ever experienced. The 104-degree fevers lasted several days. He recovered enough to travel to Europe on a scheduled family trip, finally feeling up to a 10-mile hike at the end of the visit.