diagnosis

Mariam Nawas, MD

Institution
University of Chicago
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)

Michael Drazer, MD, PhD

Institution
University of Chicago
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
About
Michael Drazer, MD, PhD, is a hematologist/oncologist and geneticist specializing in the care of people with blood disorders, blood cancers, hereditary blood disorders, and hereditary cancer syndromes. He runs one of the only clinics in the world focused on the care of people with hereditary blood cancer syndromes. Dr. Drazer's laboratory research focuses on determining the mechanisms that drive hereditary blood and cancer syndromes, with a particular emphasis on developing "high fidelity" cellular and mouse models of these disorders. He is also heavily involved in the discovery of novel

Learn about PNH (Paroxysmal Nocturnal Hemoglobinuria)

Original Publication Date
Article Source
AAMDSIF Web Content
Recently, there has been increased mention of paroxysmal nocturnal hemoglobinuria (PNH) in the news and on social media. As part of our mission, the Aplastic Anemia and MDS International Foundation (AAMDSIF) works with leading PNH specialists to provide patients, their support…

Caner Saygin, MD

Institution
University of Chicago
Physician Status
accepting new patients
Primary Disease Area of Focus
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)

Yael Kusne, MD PhD

Institution
Mayo Clinic, Phoenix, AZ
Physician Status
accepting new patients
Primary Disease Area of Focus
Chronic Myelomonocytic Leukaemia (CMML)
Myelodysplastic Syndromes (MDS)
Myeloproliferative Neoplasms (MPN)

Teen Athlete's Normal Life Interrupted by Severe Aplastic Anemia and Lengthy Treatment

“You must go to Children’s Hospital now.”

Ninth grader Patrick McLaughlin was surprised, but followed his mom’s lead, who calmly drove to the Emergency Department while disguising her fear and confusion.

Earlier that week, while Ellie was on a business trip, her elder son, Liam, called. “Mom, Paddy’s still sleeping after early dismissal.”  It was 8:30pm. At that moment, she knew that she needed to take him to the doctor.  She flew home as soon as she could, picked Patrick up at track and field workout, and dashed to the pediatrician’s office. 

PNH from the 2024 Philadelphia Patient and Family Conference

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Gloria F. Gerber, MD, explains the diagnosis and treatment of PNH, or Paroxysmal Nocturnal Hemoglobinuria. Watch this session to understand what happens to patients who develop PNH, and the options for treatment of this bone marrow failure disease.
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