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pure red cell aplasia (PRCA)

2020 National Virtual Patient & Family Conference

AAMDSIF hosted the 2020 National Patient & Family Conference ONLINE over three days, July 17 - 19, 2020. The Conference featured three days of educational workshops, panels and speakers for patients, families and caregivers with

Event Date: 
Thu, 07/16/2020 - 8:00pm (EDT) to Sat, 07/18/2020 - 8:00pm (EDT)

Guidance for Bone Marrow Failure Patients to Protect Against Coronavirus (COVID-19)

This content has been prepared in consultation with AAMDSIF Medical Advisory Board Chair Mikkael Sekeres MD, MS of Sylvester Comprehensive Cancer Center, University of Miami and Co-Chair Olatoyosi Odenike MD of the University of Chicago with additional review by Amy DeZern, MD, Johns Hopkins and Carlos De Castro, MD, Duke. ( November 2022)

2020 Patient & Family Spring Virtual Conference

About

Due to the coronavirus (COVID-19) pandemic, AAMDSIF made the decision to move our conferences online in order to protect the health of our patients, families, caregivers and faculty.

We would like to acknowledge the support of our many generous patients, families and caregivers as well as our corporate partners including Celgene, Alexion, Novartis, Genentech, Jazz Pharmaceuticals, Apellis and Acceleron.

Event Date: 
Fri, 04/24/2020 - 8:00pm (EDT)
Conference Event Type: 

2019 Patient & Family Conference (Jacksonville, Florida)

AAMDSIF in partnership with the Mayo Clinic Jacksonville hosted our final

Event Date: 
Sat, 11/16/2019 - 7:30am (EST)
Conference Event Type: 

2019 Patient & Family Conference (St. Louis Missouri)

Presentation materials from the 2019 AAMDSIF Patient & Family Conference in St. Louis, Missouri.

Event Date: 
Sat, 10/26/2019 - 7:30am (EDT)
Conference Event Type: 

Using Integrative Medicine to help patients through Treatment- a recent conversation with Dr. M. Kogan

Dr. Mikhail Kogan, Medical Director of the GW Center for Integrative Medicine, discusses incorporating Integrative Medicine into a patient's treatment plan. He describes using yoga, meditation, and other techniques to help patients while they are in treatment for

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AAMDSIF newsletter / email sign-up. You’ll learn the latest in treatments, updates on events, and topics for webinars. Discover patient stories and support groups, too, when you join the email list. Of course you can unsubscribe at any time, but we need you---together we are strong!

2019 Patient & Family Conference (Rockville, Maryland)

Thank you for attending the 2019 Patient & Family Conference in Rockville, Maryland. 

Event Date: 
Sat, 05/18/2019 - 7:30am (EDT)
Conference Event Type: 
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