Find a Specialist
A bone marrow failure diagnosis of aplastic anemia, MDS and PNH is complicated, and the treatment options require oversight by a well-trained and experienced expert. But, finding an expert can be challenging. AAMDS has…
Pure Red Cell Aplasia (PRCA)
Understanding Brain Fog, Chemo Brain, with Dr. Jorg Dietrich
Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
Presenter(s)
Jorg Dietrich, MD, PhD
In this webinar, Dr. Jorg Dietrich will discusses the diagnosis of brain fog/chemo brain and how patients can manage this symptom of disease and its treatments.
The impact of ABO compatibility on allogeneic hematopoietic cell transplantation outcomes: a contemporary and comprehensive study from the transplant complications working party of the EBMT
Original Publication Date
Article Source
External Web Content
Abstract The role of ABO blood group system mismatch on allogeneic hematopoietic cell transplantation (allo-HCT) outcomes is controversial since current publications of large datasets are lacking. We retrospectively analyzed 30,487 patients transplanted between 2010 and 2021…
Status Update Support is Growing to Restore Funding to CDMRP and BMFRP Research Programs
Original Publication Date
Article Source
Status Update
Thanks to the efforts of our AAMDSIF bone marrow failure community and coalition partners, a bipartisan group of 105 U.S. House and 29 Senate members urged their leaders to restore funding to the Congressionally Directed Medical Research Programs ( CDMRP) including the Bone…
AAMDSIF Calls for Restoration of Bone Marrow Failure Research Funding
Original Publication Date
Article Source
Coalition Action
The Aplastic Anemia and MDS International Foundation joined 156 other members of the Defense Health Research Consortium (DHRC) in calling for Congress to restore funding in Fiscal Year 2025 for the Congressionally Directed Medical Research Program (CDMRP) which includes the Bone…
Transplant and GVHD Session - 2025 Kansas City Patient and Family Conference
Topic(s)
Bone Marrow Transplant
In this recording, Dr. Anurag Singh discusses transplant and potentials complications such as GVHD and treatment options. Recording includes the question-and-answer session.
Living Well with Bone Marrow Failure, from the 2025 Kansas City Patient and Family Conference
Topic(s)
Living Well with Bone Marrow Failure
Managing Your Treatment
In this recording, Dr. Furha Cossor discusses living with bone marrow failure and fatigue management. Recording includes the question-and-answer session.
Urge your Members of Congress to Reverse the 57% Cut to the Congressionally Directed Medical Research Program
Original Publication Date
Article Source
Take Action
Federal budget negotiations are already under way. April 15 marks the 30-Day anniversary of the enactment of the 57% cut to CDMRP including the elimination of all funding to Bone Marrow Failure Research. Every medical research program at CDMRP directly impacts the health and…
AAMDSIF Supports the Accelerating Kids' Access to Care Act
Original Publication Date
Article Source
Coalition Action
AAMDSIF Supports the Accelerating Kids' Access to Care Act. On March 26, 2025, AAMDSIF joined with 212 additional patient advocacy and medical center organizations in urging members of the US Congress to pass the Accelerating Kids’ Access to Care Act. Passage of this bill will…
Oppose 57% Cut to Congressionally Directed Medical Research Programs
Original Publication Date
Article Source
Community Impact
Oppose 57% Cut to Congressionally Directed Medical Research Programs Take Action Before House Vote Oppose 57% Cut to Congressionally Directed Medical Research Programs Tell your Members of Congress to Vote NO on The Full-Year Continuing Appropriations and Extensions Act, 2025 As…