pure red cell aplasia (PRCA) | Page 3 | Aplastic Anemia & MDS International Foundation Return to top.

pure red cell aplasia (PRCA)

Aplastic Anemia, MDS, and PNH Virtual Support Group

Event Date: 
Sat, 05/28/2022 - 10:30am (EDT)

AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with

Aplastic Anemia, MDS, and PNH Virtual Support Group

Event Date: 
Sat, 04/23/2022 - 10:30am (EDT)

AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with

Seeing Cancer From All Sides: Richard M. Stone Is Giant of Cancer Care in Leukemia

Driven by his mother’s advice and his father’s memory, Richard M. Stone, MD, rose to become a global leader in leukemia care and research.

Growing up, Richard M. Stone, MD, thought he was going to be an attorney like his father, but his direction in life changed when he was 15. His father, Benjamin, developed kidney cancer when Stone was just 5 years old, and 10 years later, the disease metastasized and took the man’s life.

Stone says he went from being middle class to poor rapidly after his father died. “And that sort of gave me the incentive to work hard,” he said.

Aplastic Anemia Virtual Support Group

Event Date: 
Thu, 04/14/2022 - 4:00pm (EDT)

AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with

Aplastic Anemia Virtual Support Group (West Coast)

Event Date: 
Tue, 04/26/2022 - 9:30pm (EDT)

AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with

2022 March for Marrow California

Welcome to our first in-person March for Marrow LA, since 2019! Our 13th annual March for Marrow will be held at the iconic Shoreline Village, situated along the beautiful Long Beach Marina at 429 Shoreline Village Drive, Long Beach, CA.

Following two years of virtual events, we invite everyone in California to be with us in-person or virtually as we celebrate being together. We hope to connect with patients and families from all parts of the great state of California.

Event Date: 
Sat, 04/30/2022 - 7:00am (EDT)
Community Event Type: 

MDS Virtual Patient Support Group

Event Date: 
Sat, 03/12/2022 - 1:00pm (EST)

This virtual support group is designed to support patients diagnosed with MDS. The group is hosted by AAMDSIF and will be monitored to ensure the privacy and safety of our participants.

Transplant Virtual Support Group

Event Date: 
Wed, 03/16/2022 - 5:30pm (EDT)

This virtual support group is designed to support patients who have undergone transplant or who are considering this as a curative option for

Science Simplified: What is a Natural History Study?

Want to learn about scientific topics without needing a PhD? Check out the Science Simplified blog from TESS Research Foundation! Dr. Tanya Brown, PhD, works with researchers to make science accessible and empower rare disease community members with scientific knowledge. Dr. Brown has over a decade of experience in neurodevelopmental research and is currently the Scientific Director for TESS Research Foundation. Please reach out to her at tanya@tessfoundation.org if you have questions or comments.

Pediatric Parents Virtual Support Group

Event Date: 
Tue, 03/08/2022 - 7:30pm (EST)

This virtual support group is designed to support pediatric parents whose children have been diagnosed with

Share with addtoany.com.