Understanding Bone Marrow & Stem Cell Transplants
This guide provides important information about bone marrow and stem cell transplantation
Chronic Lymphocytic Leukemia (CLL)
Understanding Clinical Trials
This guide provides information about clinical trials and gives you some things to consider when deciding whether to take part
Financial Resources
A list of organizations & programs that may provide financial resources & other assistance
Order Patient Educational Materials
AAMDSIF provides educational materials for patients and healthcare professionals written in plain language and reviewed by highly respected and recognized medical doctors who are experts in bone marrow failure
Transplant Patient Card
Emergency health information card for patients who have received a transplant.
Non Transplant Patient Card
Emergency health information card for patients who have not received a transplant.
Instructions
Not all healthcare professionals or emergency responders will understand your rare diagnosis and unique needs. AAMDSIF has created an emergency health information card that communicates to others what they need to know…
10th International Bone Marrow Failure Disease Scientific Symposium
Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
The 10th International Bone Marrow Failure Disease Scientific Symposium will bring together physicians treating these diseases; laboratory researchers studying the genetics, genomics, and pathophysiology of bone marrow failure; and clinical investigators to discuss current areas…
Blood and Bone Marrow Basics
A patient's guide to understanding blood and bone marrow. Blood is a "circulating organ" of the body. It is composed of many different types of cells that are carried through the body in plasma. The blood helps to…
How to Evaluate the Quality of Online Health Information
As you search online, you will find websites from many different sources. These seven questions will help you analyze and evaluate the credibility of each site you review. Many of these details can also be found in a…