paroxysmal nocturnal hemoglobinuria (PNH) | Page 7 | Aplastic Anemia & MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

San Diego

Thank you for attending the 2016 San Diego Patient and Family Conference.

Event Date: 
Sat, 09/17/2016 -
8:30am to 4:30pm
Conference Event Type: 

Fighting PNH While Helping PNH Patients

Person's Name: 
Joe Ellenberger

I’m 31-years-old, and I was diagnosed with PNH in 2009 when I was 24.

I am generally athletic, and in college I was a wrestler. I knew what I could expect when training, competing, and recovering from competition. I transitioned from wresting to mixed martial arts (MMA) in 2008. Naturally, when I started that, I wanted to be sure that my training and recovery were the best they could be.

Interim analysis of post-marketing surveillance of eculizumab for paroxysmal nocturnal hemoglobinuria in Japan

Ninomiya H, Obara N, Chiba S, Usuki K, Nishiwaki K, Matsumura I, Shichishima T, Okamoto S, Nishimura JI, Ohyashiki K, Nakao S, Ando K, Kanda Y, Kawaguchi T, Nakakuma H, Harada D, Akiyama H, Kinoshita T, Ozawa K, Omine M, Kanakura Y
Primary Author: 
Ninomiya H
Journal Title: 
Int J Hematol
Original Publication Date: 
Jul 2016

Data characterizing the safety and effectiveness of


Thank you for attending the 2016 Raleigh Patient and Family Conference. Below you will find copies of all the presentations.

Event Date: 
Sat, 07/16/2016 - 8:00am
Conference Event Type: