paroxysmal nocturnal hemoglobinuria (PNH) | Page 7 | Aplastic Anemia & MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

Fighting PNH While Helping PNH Patients

Person's Name: 
Joe Ellenberger

I’m 31-years-old, and I was diagnosed with PNH in 2009 when I was 24.

I am generally athletic, and in college I was a wrestler. I knew what I could expect when training, competing, and recovering from competition. I transitioned from wresting to mixed martial arts (MMA) in 2008. Naturally, when I started that, I wanted to be sure that my training and recovery were the best they could be.

Interim analysis of post-marketing surveillance of eculizumab for paroxysmal nocturnal hemoglobinuria in Japan

Ninomiya H, Obara N, Chiba S, Usuki K, Nishiwaki K, Matsumura I, Shichishima T, Okamoto S, Nishimura JI, Ohyashiki K, Nakao S, Ando K, Kanda Y, Kawaguchi T, Nakakuma H, Harada D, Akiyama H, Kinoshita T, Ozawa K, Omine M, Kanakura Y
Primary Author: 
Ninomiya H
Journal Title: 
Int J Hematol
Original Publication Date: 
Jul 2016

Data characterizing the safety and effectiveness of


Thank you for attending the 2016 Raleigh Patient and Family Conference. Below you will find copies of all the presentations.

Event Date: 
Sat, 07/16/2016 - 8:00am
Conference Event Type: 

Selectivity of C3-opsonin targeted complement inhibitors: A distinct advantage in the protection of erythrocytes from paroxysmal nocturnal hemoglobinuria patients

Schmidt CQ, Harder MJ, Nichols EM, Hebecker M, Anliker M, Höchsmann B, Simmet T, Csincsi ÁI, Uzonyi B, Pappworth IY, Ricklin D, Lambris JD, Schrezenmeier H, Józsi M, Marchbank KJ
Primary Author: 
Schmidt CQ
Journal Title: 
Original Publication Date: 
Jan 2016