Living with PNH: Workplace Rights & Responsibilities
Information on workplace rights & responsibilities for individuals with Paroxysmal Nocturnal Hemoglobinuria (PNH)
Spread awareness by sharing and learning more. Post the social media graphic, sign up for a conference, March for Marrow, and AAMDSIF Global PNH Patient Registry! Learn more about PNH.
Paroxysmal Nocturnal Hemoglobinuria (PNH) Donate to Support Our Mission
Information on workplace rights & responsibilities for individuals with Paroxysmal Nocturnal Hemoglobinuria (PNH)
This guide provides important information about bone marrow and stem cell transplantation
This guide provides information about clinical trials and gives you some things to consider when deciding whether to take part
A Biosimilar is a type of biologic medication. The term “biosimilar” means that the medication is highly similar to the already approved brand name biologic (“originator” medication)
Supporting students with Bone Marrow Failure Diseases, a guide for parents and school personnel
MarrowForums provides free discussion forums for patients with bone marrow failure diseases
A list of organizations & programs that may provide financial resources & other assistance
Aplastic Anemia and PNH Research Summaries for Patients from the 2018 American Society of Hematology Annual Meeting
Summary for patients from the seventh International Bone Marrow Failure Disease Scientific Symposium
SOLIRIS is a prescription medicine called a monoclonal antibody. SOLIRIS is used to treat adults with a disease called Paroxysmal Nocturnal Hemoglobinuria (PNH)