paroxysmal nocturnal hemoglobinuria (PNH) | Page 6 | Aplastic Anemia & MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

Effectiveness of eculizumab in patients with paroxysmal nocturnal hemoglobinuria (PNH) with or without aplastic anemia in the International PNH Registry

Author(s): 
Lee JW, Peffault de Latour R, Brodsky RA, Jang JH, Hill A, Röth A, Schrezenmeier H, Wilson A, Marantz JL, Maciejewski JP.
Primary Author: 
Lee JW
Journal Title: 
Am J Hematol
Original Publication Date: 
Jan 2019

No abstract available

Paroxysmal nocturnal hemoglobinuria testing in patients with myelodysplastic syndrome in clinical practice-frequency and indications.

Author(s): 
Wong SA, Dalal BI, Leitch HA
Primary Author: 
Wong SA
Journal Title: 
Curr Oncol
Original Publication Date: 
Oct 2018
Background:

Complement-driven anemia: more than just paroxysmal nocturnal hemoglobinuria.

Author(s): 
Merrill SA, Brodsky RA
Primary Author: 
Merrill SA
Journal Title: 
Hematology Am Soc Hematol Educ Program
Original Publication Date: 
Nov 2018
Atypical hemolytic uremic syndrome (aHUS); hemolysis, elevated liver function tests, and low platelets syndrome; and transplant-associated thrombotic microangiopathy are related conditions, in that many patients harbor germline heterozygous mutations in genes that regulate the alternative pathway of complement (APC).

Fatigue, symptom burden, and health-related quality of life in patients with myelodysplastic syndrome, aplastic anemia, and paroxysmal nocturnal hemoglobinuria.

Author(s): 
Escalante CP, Chisolm S, Song J, Richardson M, Salkeld E, Aoki E, Garcia-Manero G.
Primary Author: 
Escalante CP
Journal Title: 
Cancer Med
Original Publication Date: 
Feb 2019
BACKGROUND:

2019 March for Marrow 5K Run & Walk Los Angeles

Come celebrate the 10th Annual March for Marrow Los Angeles with Honorary Chair Connie Britton. Our 5K and Walk have the distinction of taking place along the beautiful stretch of shoreline that is part of the Long Beach Shoreline Marina. With the iconic Queen Mary in the background, the course is scenic, flat, and regardless of weather, ideal for beating one's personal best.

Event Date: 
Sat, 04/27/2019 -
6:30am to 12:00pm
Community Event Type: 

Young Minnesotan Opens Up About Dual Diagnosis and Emphasizes Emotional Wellness

Person's Name: 
Sarah Nesheim

 

 

My Diagnosis

In the summer of 2014 I noticed ongoing bruising all over my body. At first, I thought it might have to do with my diet (low iron), but soon I noticed a new kind of mark on my skin, almost having a bulls-eye appearance. By end of summer I knew I had to do something about this.

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