paroxysmal nocturnal hemoglobinuria (PNH) | Page 5 | Aplastic Anemia & MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

Management of thrombosis in paroxysmal nocturnal hemoglobinuria: a clinician's guide

Author(s): 
Griffin M, Munir T
Primary Author: 
Griffin M
Journal Title: 
Ther Adv Hematol
Original Publication Date: 
Mar 2017

Paroxysmal nocturnal haemoglobinuria (PNH), an ultra-orphan disease with a prevalence of 15.9 per million in Europe, is a life-threatening disorder, characterized by haemolysis,

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AAMDSIF Virtual Film Festival

Over the past few years, several documentaries and dramas about people living with aplastic anemia have been created by independent filmmakers and by patients themselves. These depict the everyday lives of patients coping with a diagnosis, the challenges presented by treatment and the hardship caused by inadequate medical insurance coverage.

Whether fictional movies, or stories about actual patients and families, these portrayals bring you into the world of bone marrow failure disease in an uncompromising and straightforward manner.

Serologic response to meningococcal vaccination in patients with paroxysmal nocturnal hemoglobinuria (PNH) chronically treated with the terminal complement inhibitor eculizumab

Author(s): 
Alashkar F, Vance C, Herich-Terhürne D, Preising N, Dührsen U, Röth A
Primary Author: 
Alashkar F
Journal Title: 
Ann Hematol
Original Publication Date: 
Jan 2017

Eculizumab treatment improved renal hemosiderosis in a patient with paroxysmal nocturnal hemoglobinuria

Author(s): 
Iki S, Ohgi K, Suzuki K
Primary Author: 
Iki S
Journal Title: 
Int J Hematol
Original Publication Date: 
Nov 2016

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"Times New Roman";mso-ansi-language:EN-US;mso-fareast-language:EN-US;
mso-bidi-language:AR-SA">No abstract available.

Different clinical characteristics of paroxysmal nocturnal hemoglobinuria in pediatric and adult patients

Author(s): 
Urbano-Ispizua A, Muus P, Schrezenmeier H, Almeida A, Wilson A, Ware RE
Primary Author: 
Urbano-Ispizua A
Journal Title: 
Haematologica
Original Publication Date: 
Nov 2016

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"Times New Roman";mso-ansi-language:EN-US;mso-fareast-language:EN-US;
mso-bidi-language:AR-SA">No abstract available.

Small-molecule Factor D inhibitors selectively block the alternative pathway of complement in paroxysmal nocturnal hemoglobinuria and atypical hemolytic uremic syndrome

Author(s): 
Yuan X, Gavriilaki E, Thanassi JA, Yang G, Baines AC, Podos SD, Huang Y, Huang M, Brodsky RA
Primary Author: 
Yuan X
Journal Title: 
Haematologica
Original Publication Date: 
Nov 2016