Paroxysmal Nocturnal Hemoglobinuria (PNH)

ULTOMIRIS® is a prescription medicine called a monoclonal antibody. ULTOMIRIS® is used to treat adults and children 1 month of age and older with a disease called Paroxysmal Nocturnal Hemoglobinuria (PNH)

FABHALTA, a complement factor B inhibitor, is the first oral medication approved to treat adults with paroxysmal nocturnal hemoglobinuria (PNH)

Form to keep track of blood transfusions as part of PNH treatment

Form to record symptoms or reactions to treatment and medications that can be shared with health care providers

Form to keep track of platelet transfusions as part of PNH treatment

Chart to record medical professionals, pharmacy contacts, patient support organizations and others involved with your health care

Form to record health care visits and notes

Learn how to build a strong healthcare team

Tips for improving medication adherence

Use the AAMDS Map of Specialists to find a PNH expert