Characterizing clinically significant extravascular hemolysis in adults with PNH on ravulizumab or eculizumab treatment
In patients with paroxysmal nocturnal hemoglobinuria paroxysmal nocturnal hemoglobinuria:
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Understanding PNH Treatment Options
Summary of FDA-approved medicines for treating PNH and transplantation options.
Understanding Aplastic Anemia and Overlapping Diseases
Learn more about the connection between aplastic anemia and other bone marrow failure diseases.
Transplant Patient Card
Emergency health information card for patients who have received a transplant.
Non Transplant Patient Card
Emergency health information card for patients who have not received a transplant.
Instructions
Not all healthcare professionals or emergency responders will understand your rare diagnosis and unique needs. AAMDSIF has created an emergency health information card that communicates to others what they need to know…
10th International Bone Marrow Failure Disease Scientific Symposium
Topic(s)
Aplastic Anemia
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
The 10th International Bone Marrow Failure Disease Scientific Symposium will convene physicians, laboratory researchers and clinical investigators to discuss current areas of consensus and controversy, share recent research results, and clarify promising directions for…
EHA and ASCO 2021 - Aplastic Anemia and PNH for Patients
This publication offers summaries of selected abstracts presented at the 2021 Meetings of the European Hematology Association (EHA) and the American Society of Clinical Oncology (ASCO). It provides new and updated…
ASH 2022 Aplastic Anemia and PNH - Booklet
This publication offers summaries of selected abstracts presented at the Annual Meeting of the American Hematology Society held in December 2022. It provides new and updated information about research into the diagnosis…
EMPAVELI Fact Sheet
What is EMPAVELI®? EMPAVELI® (previously known as pegcetacoplan) is the first PNH treatment that binds to complement protein C3. It is approved by the Food and Drug Administration for adult patients with paroxysmal…