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aplastic anemia

2019 Patient & Family Conference (St. Louis Missouri)

Presentation materials from the 2019 AAMDSIF Patient & Family Conference in St. Louis, Missouri.

Event Date: 
Sat, 10/26/2019
Conference Event Type: 

Soldier faces down Aplastic Anemia in 1980, paving the way for ATG treatment!

Person's Name: 
Johnnie Burford

Johnnie Burford was deployed in Korea.  He was a muscular 195-lb athlete, a proud member of the US Army Second Division.  Nothing stopped him from performing his duty.  Yet a rapid weight loss of 100 pounds, coupled with unusual bruising, alerted him that something was very wrong.

Content source: 
Bone Marrow Diseases: 

A Phase II Dose-escalation Study Characterizing the PK of Eltrombopag in Pediatric Patients With Previously Untreated or Relapsed Severe Aplastic Anemia or Recurrent Aplastic Anemia

This is a phase II, open label, multi-center, intra-patient dose escalation study to characterize the pharmacokinetics after oral administration of

2019 Patient & Family Conference (Pittsburgh Area)

Conference materials from the 2019 Patient & Family Conference:  Pittsburgh area

Event Date: 
Sat, 09/21/2019
Conference Event Type: 

Get involved with AAMDSIF!

There are many ways patients, families, caregivers, communities and friends can help support the Foundation in our search for a cure. Join us! 

Event Date: 
Wed, 01/01/2020
Community Event Type: