Aplastic Anemia
Letter on the Bipartisan Senate FY25 Labor-HHS-Education Appropriations Bill
Original Publication Date
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Coalition Action
AAMDSIF is Taking a Stand for NIH Research Research programs led by the National Institutes of Health (NIH) forge the way for life-saving new treatments for rare diseases such as aplastic anemia, MDS, and PNH. With clinical research locations throughout the U.S., researchers and…
Aplastic Anemia and Transplant
Topic(s)
Bone Marrow Transplant
Aplastic Anemia
Presenter(s)
Amy E. DeZern, MD, MHS
In this webinar, Dr. Amy DeZern discusses the latest in transplantation and GVHD for aplastic anemia. The presentation will include information on clinical trials available to patients considering a transplant. The recording includes the question and answer session.
Watch and Wait? Xinyi's Patient Journey wtih Aplastic Anemia
She was a sophomore in high school. Before she could try out for Cheer squad, she had to have a physical.
The routine Complete Blood Count revealed a problem.
2025 Kansas City Patient and Family Conference
Here are links to the conference sessions from the 2025 Kansas City Patient and Family Conference:
2025 Rockville Patient and Family Conference
The 2025 Patient and Family Conference in Rockville, MD was held on March 8, 2025.
Below are links to conference session recordings in full.
Aplastic Anemia and Transplant
Aplastic Anemia Virtual Support Group - Evenings- 2025 October
AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious co
Putting Treatment Behind Him: Webb's Journey through Aplastic Anemia
Webb was in university, playing soccer, when he started noticing a rash and breathlessness during a run. He’d never had either symptom, particularly since he was in such good shape, playing soccer since the age of three.
ASH 2024 Update: Aplastic Anemia and PNH
Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Aplastic Anemia
Presenter(s)
Taha Bat, MD
In this webinar, Dr. Taha Bat discusses research most relevant to patients reported over the past year on the biology and treatment on Aplastic Anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2024 meeting and their findings will be…