pediatric patient / parent

Ask the PNH Expert

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Topic(s)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presenter(s)
Thomas G. DeLoughery, MD, MACP, FAWM
Thomas G. DeLoughery, MD, MACP, FAWM, answers questions from the live, online audience in this recording on PNH, or Paroxysmal Nocturnal Hemoglobinuria.

Treating Aplastic Anemia in Older Adults

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Topic(s)
Aplastic Anemia
Presenter(s)
Bhavisha Patel, MD
Dr. Patel explains the challenges and successes for treating aplastic anemia when diagnosed in an older adult. The recording includes an extensive question and answer section with the virtual attendees.

Pediatric Parent Panel Discussion

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Topic(s)
Pediatric Bone Marrow Failure Diseases
This webinar features parents and guardians of pediatric patients who have been diagnosed with a bone marrow failure disease like aplastic anemia, MDS or PNH. The panel includes parents and guardians at all stages of their journeys, from diagnosis to treatment to survivorship.

Carefree: Finding Respite

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Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
COVID-19
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
In this webinar, Jane Hamilton discusses the benefits of respite care for caregivers. Learn tips and tools to hire a respite worker, how to partner and share the care.

Living with MDS: A Patient Panel

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Topic(s)
Acute Myeloid Leukemia (AML)
Living Well with Bone Marrow Failure
Myelodysplastic Syndromes (MDS)
Patient panel discussions are a chance to meet some of the inspiring patients, caregivers and parents who are dealing with a bone marrow failure disease. Panel discussions are a bit different from our regular educational webinars so please plan to participate via the Q & A window…

Ask the MDS Expert

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Topic(s)
Acute Myeloid Leukemia (AML)
Myelodysplastic Syndromes (MDS)
Presenter(s)
Sandrine Niyongere, MD
Dr. Sandrine Niyongere will gives a brief MDS overview and then answer questions from participants. This interactive webinar recorded patients asking questions that are answered directly by a MDS Expert. #MDS #myelodysplasia #bloodcancer

Understanding Integrative, Holistic and Functional Medicine

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Topic(s)
Acute Myeloid Leukemia (AML)
Aplastic Anemia
Bone Marrow Transplant
Living Well with Bone Marrow Failure
Managing Your Treatment
Myelodysplastic Syndromes (MDS)
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Pediatric Bone Marrow Failure Diseases
Related Bone Marrow Failure Diseases and Malignancies
Presenter(s)
Mikhail Kogan, MD
Dr. Mikhail Kogan, Medical Director of the GW Center for Integrative Medicine, discusses the differences between integrative, holistic and functional medicines and how they can be used to treat patients. The end of the webinar features questions from patients in the audience.

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