AAMDSIF Staff | Aplastic Anemia & MDS International Foundation Return to top.

AAMDSIF Staff

Chief Executive Officer

Brad A. Wong is passionate about serving patients and families with life-threatening rare diseases. As CEO and Executive Director of AAMDSIF, he is responsible for the overall management and direction of the Aplastic Anemia & MDS International Foundation, which is the world’s leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PHN), and related bone marrow failure diseases.

In collaboration with the Board of Directors and staff, Brad leads the Foundation’s efforts to advance its mission of providing hope to patients and families affected by bone marrow failure diseases through support, education, research, and advocacy. Throughout his career, Brad has been personally and professionally committed to empowering patients to become effective advocates for their personal care and the healthcare policies that affect them, promoting access to quality care, strengthening medical education, and advancing medical research.

Brad has extensive nonprofit leadership experience including serving as President & CEO of the Pulmonary Hypertension Association, Executive Director of the Foundation of the American Academy of Ophthalmology, and Assistant Vice President of the University of California, San Francisco Foundation.

“I look forward to leading AAMDSIF as we address the advances in the treatment of bone marrow failure diseases, ultimately resulting in more patients living longer and better lives,” he says.

Tricia Maddrey Baker

Tricia Maddrey Baker, Communications Manager. Tricia is responsible for expanding the Foundation’s online connection between our patient and health professional communities and the education, support and research programs that we offer. Her diverse background ranges from small nonprofits and associations to corporate philanthropy. She’s also achieved excellent results in stakeholder engagement and credits her parents with her passion for service, as well as her artistic vision. Connect

Patient and Health Professional Services

Alice Houk

Alice Houk, Senior Director of Patient and Health Professional Services. Alice manages the research grant program, monitors newly published research and drug company announcements, coordinates the Scientific Symposium, serves as liaison to the Medical Advisory Board, and is the primary contact with other professional and patient organizations. She also leads efforts in educating health professionals about bone marrow failure diseases.  Her nonprofit experience includes having served as a national organizer for the SAFE KIDS campaign and as a regional program coordinator for the March of Dimes. In addition, Alice has extensive experience working with volunteers in educational, fundraising, and program areas. She holds a Master's degree in Health Policy from the University of Maryland. Connect

Leigh Clark

Leigh Clark, Director of Patient Services. Leigh has dedicated more than a decade to serving patients, families, and loved ones in the rare bone marrow failure disease sector for AAMDSIF.  In this role, her reach spreads across the nation to points across the globe. Leigh helps coordinate all of the AAMDSIF Patient & Family Conferences, webinars and support groups as well as providing direct assistance via the Helpline and Chat. Her previous experience includes working as a patient advocate for individuals with developmental disabilities. Leigh is a board certified patient advocate (BCPA). She currently holds an Associate of Arts in Psychology and is currently working on a Bachelor of Science in Psychology from University of Maryland Global Campus. As a a cancer survivor, Leigh understands the life changing phase of diagnosis, the life threatening phase of treatment and the life long phase of living with cancer. Connect

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Development

Desiree Ruiters

Desiree Ruiters, Senior Director of Development. Desiree is responsible for corporate development and grants management. Establishing and maintaining relationships with the Foundation’s partners in the pharmaceutical and health care services area is a key aspect of her work. She studied at the University of Capetown, South Africa, and her previous experience includes accounting and asset management at Mobil Oil in South Africa before moving to the Washington, DC area.  Connect

Elise Harper

Elise Harper, Development Associate. Elise is the 2018 Phyllis McCarthy Public Interest Service Award winner from Public Citizen. Elise joined the Foundation in 2010, providing admin support for the CEO, managing the database of patients and health care professionals and handling financial processes. Connect

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