Minneapolis
Thank you for attending the 2017 Minneapolis Patient and Family Conference.
Event Date:
Sat, 07/22/2017 - 8:00am (EDT)
Conference Materials:
Bone Marrow Disease(s):
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Gouldsmith Family Pulls Together for Gabby
Person's Name:
Heather Gouldsmith
In June 2011, my daughter Gabby was seven, and we had just relocated from Las Vegas to Reno, Nevada. She seemed tired and had alarming bruises on her shins. She also had a persistent ear infection and I noticed red dots (petechiae) on her shoulders.
Bone Marrow Disease(s):
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Nashville
Thank you for attending the 2017 Nashville Patient and Family Conference.
Event Date:
Sat, 06/24/2017 - 7:30am (EDT)
Conference Materials:
Bone Marrow Disease(s):
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AAMDS Amy Gaynor Research Fund
Amy Gaynor was a tenth grade honor student at Cleveland Heights High School as well as a member of the girls’ varsity tennis team and swim cadets. She belonged to an Amateur Athletic Union swim team and volunteered to teach swimming to children with disabilities. Amy was also a fine pianist. But in 1977, at age 15, Amy was diagnosed with
My Life is Making a Difference
Person's Name:
Denise Beauchemin
Beginning September 2012, I just wasn’t feeling quite right. I was increasingly fatigued and there were some perplexing bleeding incidents, as well. After many months I experienced partial vision – just little areas of vision that were blank. Internal bleeding in the eyes was causing this, and my eye doctor knew it was serious and even thought it could be leukemia.
Bone Marrow Disease(s):
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Solving a Diagnostic Mystery
Person's Name:
Emma's Story, Part 1
In January 2016, my 9 year-old daughter Emma turned yellow. After seeing her regular doctor, we were sent straight to the hospital. They found that her liver enzymes were extremely elevated and sent us to a second hospital. After extensive blood panels and scans, they still couldn’t determine the cause of Emma’s liver inflammation, and so the process to find her a new liver began.
Bone Marrow Disease(s):
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South African Girl with PRCA Gets German Match
Person's Name:
Rachel Ancer
Our 8 year-old daughter Rachel was admitted to Groote Schuur Hospital in Cape Town, South Africa yesterday, March 6, to prepare for her bone marrow transplant. It is auspicious for us that she was admitted during
Bone Marrow Disease(s):
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An Unusual Route to Diagnosis
Person's Name:
Jane Massey
Although it sounds strange, I am beginning to believe that breast cancer possibly has saved my life. In October 2015, I was diagnosed with stage 2 lobular carcinoma of the breast. My cancer was found during my routine mammogram. I opted for a bi-lateral mastectomy and then had 33 radiation treatments in early 2016. I saw my oncologist every month due to my treatment and she ran blood work every time.
Bone Marrow Disease(s):
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Horse ATG Saves Young Equestrian
Person's Name:
Liviya Anderson
Bone Marrow Disease(s):
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I’m working through aplastic anemia – my son helps me keep focused.
Person's Name:
John Vasquez
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