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Vote for Luke Gane, Aplastic Anemia Survivor and Nominee for 2012 Rare Disease Champion Award

Luke Gane, UCLA Bruin football player, shown here with Denver Bronco quarterback Tim Tebow, has been selected as a finalist for the Uplifting Athletes 2012 Rare Disease Champion!

Read Luke’s inspirational story and cast your vote.

Where will we see you in 2012? Registration is open for all 2012 Living with Aplastic Anemia, MDS or PNH patient & family conferences. Hear from experts, meet other patients, have questions answered and build your community of hope.

Learn more and register now.

Late Breaking Interviews from ASH

Watch interviews from leading experts about the most important information presented at the American Society of Hematology Annual Meeting. Hear Dr. Mikkael Sekeres on MDS and Dr. Carlos de Castro on PNH

Watch the interviews

New Customizable Search Tool for the Online Learning Center

New programs are always being added to our Online Learning Center. Try this new search tool that allows you to easily search for any of the programs you may want to view. You can filter by program type, disease type, or any key word.

Try the search tool.

NIH State-of-the-Science Symposium on MDS Summary Booklet for Patients and Caregivers

By learning more about scientific aspects of MDS, patients can make more informed decisions about treatments and disease management. Request a free copy at (800)747-2820, x116, or send an email to harper@aamds.org.

DOWNLOAD THE REPORT NOW

Look to AA&MDSIF to Be Your Partner in Patient Care

We are your resource of choice, providing everything you need to serve your bone marrow failure disease patients. We offer research updates, practical treatment guidance, CME opportunities, and patient education resources.

Learn more.

Start Your Self-Advocacy Journey

Standing Up For Your Health depends on you being your own best advocate and healthcare champion. We are your partner in helping you build the skills you need to succeed! Whether you are newly diagnosed, or have been living with aplastic...

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Do You Follow Us on Facebook?

Connect with other patients and families on our Facebook page! We believe it is important to continuously stay in touch and provide updates on the latest information on bone marrow failure diseases. We hope you'll post questions or...

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About Bone Marrow Failure

Aplastic Anemia »

Aplastic anemia happens when the bone marrow stops making blood cells for the body.
Myelodysplastic Syndromes (MDS) »

MDS is a group of disorders that happens when bone marrow cells don't mature.
Paroxysmal Nocturnal Hemoglobinuria (PNH) »

PNH is a rare blood disease that causes red blood cells to break apart.