paroxysmal nocturnal hemoglobinuria (PNH)

Ricky Smith, Jr.

"I just wanted to live the normal life of a teenager," said Ricky. But it just wasn’t meant to be. When he was taken to the hospital to find out why he’d become so weak, he passed out because he had so little blood in his body.

Management of thrombosis in paroxysmal nocturnal hemoglobinuria: a clinician's guide

Griffin M, Munir T
Primary Author: 
Griffin M
Journal Title: 
Ther Adv Hematol
Original Publication Date: 
Mar 2017

Paroxysmal nocturnal haemoglobinuria (PNH), an ultra-orphan disease with a prevalence of 15.9 per million in Europe, is a life-threatening disorder, characterized by haemolysis,

Tartan Trailblazers March for Marrow: Detroit, Michigan

Get up, get out and get going to the Tartan Trailblazers March for Marrow 5K Run & Walk! Whether you’re a jock or not, you can turn out and help us find a cure for

Event Date: 
Sun, 06/04/2017 -
11:00am to 3:30pm
Community Event Type: 

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AAMDSIF Virtual Film Festival

Over the past few years, several documentaries and dramas about people living with aplastic anemia have been created by independent filmmakers and by patients themselves. These depict the everyday lives of patients coping with a diagnosis, the challenges presented by treatment and the hardship caused by inadequate medical insurance coverage.

Whether fictional movies, or stories about actual patients and families, these portrayals bring you into the world of bone marrow failure disease in an uncompromising and straightforward manner.

Serologic response to meningococcal vaccination in patients with paroxysmal nocturnal hemoglobinuria (PNH) chronically treated with the terminal complement inhibitor eculizumab

Alashkar F, Vance C, Herich-Terhürne D, Preising N, Dührsen U, Röth A
Primary Author: 
Alashkar F
Journal Title: 
Ann Hematol
Original Publication Date: 
Jan 2017