Thank you for attending the 2017 Nashville Patient and Family Conference.
But when the strong and active mother of two received her
“I was having a pretty awesome year. I was very well known at school and I had a boyfriend.” She had just been accepted at the school of her choice when she noticed how really tired she was all the time. And then the bleeding started.
"I just wanted to live the normal life of a teenager," said Ricky. But it just wasn’t meant to be. When he was taken to the hospital to find out why he’d become so weak, he passed out because he had so little blood in his body.
Paroxysmal nocturnal haemoglobinuria (PNH), an ultra-orphan disease with a prevalence of 15.9 per million in Europe, is a life-threatening disorder, characterized by haemolysis,
Get up, get out and get going to the 2017 Milwaukee March for Marrow! Whether you’re a jock or not, you can turn out and help us find a cure for
Get up, get out and get going to the Tartan Trailblazers March for Marrow 5K Run & Walk! Whether you’re a jock or not, you can turn out and help us find a cure for