paroxysmal nocturnal hemoglobinuria (PNH) | Aplastic Anemia and MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

Kansas City

Thank you for attending the 2017 Patient and Family Conference in Kansas City, MO.

Thank you for attending the 2017 Patient and Family Conference in Kansas City, MO.
Event Date: 
Sat, 10/14/2017 -
7:30am to 1:30pm
Conference Event Type: 

Barry Gore

He became the owner of a prosperous machine manufacturing business that his son now runs. But when he was still in his fifties, a family history of heart disease finally caught up with him. Barry’s internist directed him to a cardiologist, suspicious that his complaint of chest pain was more than acid reflux. He was right, and Barry underwent triple-bypass surgery.

Newark

Thank you for attending the 2017 Patient and Family Conference in Newark, NJ.

Thank you for attending the 2017 Patient and Family Conference in Newark, NJ.
Event Date: 
Sat, 09/16/2017 -
8:00am to 3:30pm
Conference Event Type: 

Brandi Lewis

In 2011, she made history there as the first black Miss UNA. Her next coveted role was as a college intern on Capitol Hill in Washington, D.C. But by far, the hardest part she ever had to undertake was that of a

T Cell Transcriptomes from Paroxysmal Nocturnal Hemoglobinuria Patients Reveal Novel Signaling Pathways

Author(s): 
Kohei Hosokawa, Sachiko Kajigaya, Keyvan Keyvanfar, Wangmin Qiao, Yanling Xie, Danielle M. Townsley, Xingmin Feng and Neal S. Young
Primary Author: 
Kohei Hosokawa
Journal Title: 
Journal of Immunology
Original Publication Date: 
Jul 2017

2017 March for Marrow NYC: Walk for PNH

Join us for the 2017 March for Marrow NYC: Walk for PNH! Lace up your sneakers and join hundreds of other walkers to raise awareness and funds for research and education for this very rare disease. Register as an individual walker, join an existing team, or start one of your own.

Event Date: 
Sun, 09/17/2017 -
10:00am to 1:30pm
Community Event Type: 

Minneapolis

Thank you for attending the 2017 Minneapolis Patient and Family Conference.

Event Date: 
Sat, 07/22/2017 -
8:00am to 3:30pm
Conference Event Type: 

Standardized High-Sensitivity Flow Cytometry Testing for Paroxysmal Nocturnal Hemoglobinuria in Children with Acquired Bone Marrow Failure Disorders: A Single Center U.S. Study

Author(s): 
Donohue RE, Marcogliese AN, Sasa GS, Elghetany MT, Redkar AA, Bertuch AA, Curry CV
Primary Author: 
Donohue RE
Journal Title: 
Cytometry B Clin Cytom
Original Publication Date: 
Jun 2017

BACKGROUND:

Nashville

Thank you for attending the 2017 Nashville Patient and Family Conference.

Event Date: 
Sat, 06/24/2017 -
7:30am to 1:30pm
Conference Event Type: