Join us for the 2017 March for Marrow NYC: Walk for PNH! Lace up your sneakers and join hundreds of other walkers to raise awareness and funds for research and education for this very rare disease. Register as an individual walker, join an existing team, or start one of your own.
Thank you for attending the 2017 Minneapolis Patient and Family Conference.
Thank you for attending the 2017 Nashville Patient and Family Conference.
But when the strong and active mother of two received her
“I was having a pretty awesome year. I was very well known at school and I had a boyfriend.” She had just been accepted at the school of her choice when she noticed how really tired she was all the time. And then the bleeding started.
"I just wanted to live the normal life of a teenager," said Ricky. But it just wasn’t meant to be. When he was taken to the hospital to find out why he’d become so weak, he passed out because he had so little blood in his body.