AAMDSIF hosts Patient and Family Conferences around the United States each year. Conferences are free to attend and include presentations by the leading medical experts in rare blood cancers and
bone marrow failure
bone marrow failure:
A condition that occurs when the bone marrow stops making enough healthy blood cells. The most common of these rare diseases are aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH). Bone marrow failure can be acquired (begin any time in life) or can be…
diseases. It is also an incredible and important opportunity for patients to connect with one another and share support, answers and hope.
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2026 Conferences
Who should attend?
- Aplastic anemia Aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is low. Most… , PNH, MDS, MPN, and AML patients
- Those who are newly diagnosed or currently in treatment, as well as long-term survivors
- Caregivers, family members or friends
- Nurses and other healthcare professionals are also welcome
Why should you attend?
- Gain unprecedented access to top experts
- Get your questions answered
- Return home a wiser and better-equipped self-advocate
- Meet those who genuinely understand what you are going through
- Build a strong and supportive community
- Leave with a sense of optimism and hope for the future
- Mark your calendars now. Advance registration is always recommended.
What to Expect from AAMDSIF Conferences:
- An in-depth review of the current thinking on aplastic anemia, PNH, MDS, MPN, and AML.
- Practical steps you can take to become an even stronger advocate for your best care and treatment.
- Practical strategies for improving your health and well-being in spite of your illness.
- Meet other patients and family members, join a Community Connection group in your area and discover our Peer Support Network.
- Learn how AAMDSIF can help you with this life-altering journey.
Need Help?
If you have questions regarding our conferences or registration, please call our conference information line at 301-279-7202 x 128 or email us at conference@aamds.org
Details for upcoming Patient and Family Conferences will be posted in January. Subscribe to receive information like this.
2025 Rockville Patient and Family Conference
Event Date:The 2025 Patient and Family Conference in Rockville, MD was held on March 8, 2025.
Below are links to conference session recordings in full.
Aplastic Anemia and Transplant
PNH Complications with Philip Scheinberg
Aplastic Anemia
MDS and Transplant
Low Risk MDS
Debra's Story - Aplastic… Read more »
2025 Kansas City Patient and Family Conference
Event Date: -Here are links to the conference sessions from the 2025 Kansas City Patient and Family Conference:
MDS/MPN Overlap
PNH and Current Therapies
Living Well with Bone Marrow Failure
Judy's Story of PNH
Transplant and GVHD
Aplastic Anemia
PNH Complications
High Risk MDS
2025 San Francisco - Bay Area Patient and Family Conference
Event Date: -Recorded Sessions:
Nutrition for Aplastic Anemia, MDS, or PNH
Managing PNH Treatments
Advances in Aplastic Anemia
What is PNH?
Transplant and GVHD: Aplastic Anemia and PNH
Inherited Bone Marrow Failure (focus on pediatrics)
Expert Panel: Pediatric Bone Marrow Failure
Life After… Read more »
2025 Boston Patient and Family Conference
Event Date:Session Recordings Available:
MDS to MPN Overlap from the 2025 Boston Patient and Family Conference
High Risk MDS from the 2025 Boston Patient and Family Conference
Low Risk MDS from the 2025 Boston Patient and Family Conference
What is Aplastic Anemia? From the 2025 Boston Patient and… Read more »
2025 Chapel Hill Patient and Family Conference
Event Date:Recordings:
Aplastic Anemia
Low Risk MDS
High Risk MDS to AML
Transplant and GVHD
MDS/MPN Overlap
A Patient Story: Shauna McMillian
Managing PNH Complications
2024 Los Angeles Patient and Family Conference
Event Date:2024 Patient and Family Conference in Los Angeles
Session Recordings:
Transplant for Aplastic Anemia and MDS
Emerging Therapies in High-Risk MDS
Cardiovascular Concerns after HCT
Supportive Care Management
Advances in the Therapy of PNH
Advances in Treating Lower-Risk MDS
Palliative Care… Read more »
2024 Seattle Patient and Family Conference
Event Date:Watch these recordings from the Conference Sessions:
What is my Diagnosis?
Aplastic Anemia
Inherited Bone Marrow Failure
Leukemic Transformation
Myelodysplastic Syndromes
MDS and Transplant Therapies
MPN Transplant Therapies
MPN Non-Transplant Therapies
2024 Philiadelphia, PA, Patient and Family Conference
Event Date: -The conference was held over two days - Friday, July 19 from 2-7 PM ET and Saturday, July 20 from 8AM - 4 PM ET.
Watch these recordings from conference sessions:
High-Risk MDS
A Patient Story
Aplastic Anemia
GVHD - Graft VS Host Disease
Low-Risk MDS
PNH
Nutrition and Bone Marrow Failure… Read more »
Learn More / Register:
2024 Chicago Patient and Family Conference
Event Date:Watch these sessions 2024 Patient and Family Conference, held in partnership with the University of Chicago.
Aplastic Anemia
Advances in Treating PNH
Fatigue Management
Learn More / Register:
2024 Tampa Patient and Family Conference
Event Date:Due to the impact on the Tampa, Florida community and surrounding areas by Hurricanes Helene and Milton, the AAMDSIF Tampa Patient and Family conference has been cancelled.
We will be announcing future webinars so stay tuned for more information from us.
Our thoughts are with… Read more »
2023 Omaha Patient and Family Hybrid Conference
Event Date:Here are the session recordings and the presentations for the 2023 Omaha Patient and Family Hybrid Conference.
Aplastic Anemia Non-Transplant Therapies and Clinical Trials, from Omaha Patient and Family Hybrid Conference 2023
High Risk MDS Non-Transplant Therapies Current Therapies and… Read more »
2023 Salt Lake City Patient and Family Conference
Event Date:Thank you for attending the 2023 Salt Lake City Patient and Family Conference. We will keep uploading presentations as we receive them, please keep checking back for updates.
Presentation Materials:
Predisposition to Inherited Bone Marrow Failure Syndromes
Aplastic Anemia and… Read more »
2023 New Haven Patient and Family Conference
Event Date:On October 14, 2023, Patient and Family Hybrid Conference, in Partnership with Yale Cancer Center, was held in New Haven, CT. Find recordings or materials from this conference here.
Session Recordings:
High-Risk MDS
Managing Low Blood Counts
PNH and Non-Transplant Therapies
Aplastic… Read more »
2023 AAMDSIF Patient and Family Conference in Dallas, TX
Event Date:Join patients, families and caregivers for the 2023 Dallas, TX Patient and Family Conference This event is chaired and organized by Dr. Taha Bat from UT Southwestern.
Patients with
aplastic anemia
aplastic anemia:
(ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the… Read more »
Learn More / Register:
