Caregivers

Over 65 million Americans take care of other adults, often parents or spouses, or children with special medical needs. Caregivers may be a day-to-day lifeline for patients, or they may support them from afar in otherways. These generous people need support to understand how they can best play their role. 

Caregiving Advice

The National Family Caregivers Association's Director of Caregiver Wellness Programs, Jane Meier Hamilton, RN, MSN, has been a nurse for 40 years and family caregiver for 20 years. In a recent interview, she offered advice for family caregivers.

Caring by Patient Type

All patients are different and all have unique needs. But there are special circumstances to consider for patients in certain categories, such as children, older adults and veterans. Caregivers should educate themselves on what's most important when helping these patient groups learn how to cope with their conditions.  

Caring for the Caregiver

Whether you provide physical, social, emotional or household support, caring for patients suffering from rare and chronic bone marrow failure disease is not a simple task. It can be stressful for caregivers, patients and other family members who might also need their own form of support. Caregivers must themselves feel well in order to manage their responsibilities.

Resources to Help

AAMDSIF has compiled a broad range of helpful resources to assist caregivers as they support the bone marrow failure patients in their lives.