Patient and Family Webinars

In this recording, Dr. Srinivasa Sanikommu discusses current thinking on PNH and therapies that are available to patients. Recording includes the question-and-answer session. 

In this recording, Dr. Furha Cossor discusses living with bone marrow failure and fatigue management. Recording includes the question-and-answer session.

Judy talks about her PNH journey from diagnosis, treatment decisions and moving forward.

In this recording, Dr. Anurag Singh discusses transplant and potentials complications such as GVHD and treatment options. Recording includes the question-and-answer session. 
 

In this recording, Dr. Srinivasa Sanikommu discusses PNH complications that can impact a patient - extravascular hemolysis, intravascular hemolysis, Budd-Chiari Syndrome and blood clots. Recording includes the question-and-answer session.

In this webinar, Drs. Fadi Haddad and Jayastu Senapati discuss the diagnosis secondary AML from MDS, treatment options available to patients and symptom management. 

In this webinar, Dr. Amy DeZern discusses the latest in transplantation and GVHD for aplastic anemia. The presentation will include information on clinical trials available to patients considering a transplant.  The recording includes the question and answer session.
 

In this recording, Dr. Catherine Lai discusses MDS and how patients can also be diagnosed with MPN's. Her presentation discusses the treatment options available to patients and resources. 

In this recording, Dr. Bhumika Patel discusses what is new in PNH and current treatment options available to patients. 

Debra shares both her experiences and how she maintained hope with Aplastic Anemia and its treatment.

In this recording, Dr. Ball Brian discusses low risk MDS and current treatment options.

In this recording, Dr. Phillip Scheinberg discusses aplastic anemia and current treatment options available to patients. 

In this recording, Dr. Parveen Shiraz discusses transplant for MDS and potentials complications such as GVHD and treatment options.

In this recording, Dr. Philip Scheinberg discusses PNH complications that can impact a patient - extravascular hemolysis, intravascular hemolysis, Budd-Chiari Syndrome and blood clots. 

In this webinar, Dr. Taha Bat discusses research most relevant to patients reported over the past year on the biology and treatment on Aplastic Anemia and PNH. These studies were presented at the American Society of Hematology (ASH) 2024 meeting and their findings will be explained along with the potential impact of this research on understanding and treating aplastic anemia and PNH. This is an advanced scientific presentation. At the end of the presentation, there will be a question and answer session. Questions can be submitted in advance at help@aamds.org.

In this webinar, Dr. Akriti Jain discusses research most relevant to patients reported over the past year on the biology and treatment on MDS and AML. These studies were presented at the American Society of Hematology (ASH) 2024 meeting and their findings will be explained along with the potential impact of this research on understanding and treating MDS and AML. This is an advanced scientific presentation.

In this webinar, Dr. Alejandro Marinos Velarde discusses the risk factors that can cause post transplant relapse along with treatment and management of relapse. He answers questions from the live audience as well.

In this webinar, Dr. Tim Pearman discusses fatigue and  how it can be best managed. Jenny Finkle demonstrates some gentle exercises you can do to increase your energy level.  This was an interactive session. 

In this webinar, Dr. Jamile Shammo discusses the latest in PNH research and treatments.