Stories of Hope

Beyond the statistics of bone marrow failure diseases are inspirational stories of hope and courage. From patients and families who fight these diseases to the volunteers in communities across the country who help to spread awareness, each of them has a story to tell.  

Meet these extraordinary people and learn more about them and their motivating stories of hope.  They are courageous and optimistic.  We know that you will find support and encouragement.

We welcome your story of hope - in print or on video. It will help many more patients and families.  Please email us at mystory@aamds.org or call Mike Breuer at (301) 279-7202 x111.  Thank you. 

Please visit this page frequently for new stories to read and share with your family and friends.

Note that inclusion of information in a Story of Hope does not constitute an endorsement or recommendation of any medical care provider, treatment practice, medication, product, or manufacturer. AA&MDSIF encourages patients to seek medical advice from a qualified hematologist/oncologist and to discuss their individual questions and concerns with their doctor. 
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In February of 2011 I was 22-years-old and attending Orange Coast College. One day I began to notice that I was bruising easily. My legs were covered in bruises by the time I went to my doctor.  The doctor told me I was probably anemic and run down due to my work and school...
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At AA&MDSIF, we deeply appreciate the vital role nurses play in patient care – they are wonderful listeners, educators, motivators, and knowledgeable professionals who make a difference every day in the lives of so many patients and families. This past May, in celebration of...
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I grew up in Louisiana - born in New Orleans and raised in Lafayette. I joined the Army, and went to Seattle and worked at Madigan General Hospital where I met my wife. I was then sent to Vietnam. After I returned, I worked for a bank in Seattle for 16 years, becoming a vice...
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Volleyball, basketball, softball, church, friends, and boys: this was my life at 17 when I got the news. It was October of 2005, the beginning of high school basketball season in my hometown of Beckley, West Virginia, when I became ill. I thought it was a really bad cold or even...
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My name is Martha Sue Porter and I celebrated my seventy-second birthday on May 7th of this year. I have MDS and this is my third year as a survivor having been diagnosed in September 2011. I have an older son and daughter-in-law who have two young children - my delightful...
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“My Dad passed away in 2011 due to complications from MDS, and I am looking for a way to help raise funds for this cause in his memory.” With this simple email message, the idea for the South River Hope, Steps & A Cure Walk/5K Run was born! Family member and AA&MDSIF...
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At AA&MDSIF, we know that nurses are vital partners in patient care – they are wonderful listeners, educators, motivators, and knowledgeable professionals who make a difference every day in the lives of so many patients and families. In celebration of National Nurses Week...
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The following is a story written by aplastic anemia patient David Mu after the bone marrow transplant that saved his life more than 10 years ago. The trees blended into a green blob as the old Mazda sped along Interstate I-95 on a wintry, November morning. As the Baltimore...
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Our daughter, Serena, was diagnosed with severe aplastic anemia in August 2013. She is 7 years old and in second grade. She is still undergoing treatment and has been the strongest person I know. Her situation began in January 2013 when she had the flu and was out of school for...
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"I discovered that I might not live to my 40th birthday."One of the last things I expected in life was to be diagnosed with a rare disease.  After completing my PhD in Food Science at the University of Minnesota in 1998 and starting a career as a product development...