Stories of Hope
The day you were diagnosed, you became a survivor. The day your loved one is diagnosed, you become a survivor too. These stories provide hope and inspiration, role models and real life experiences for other patients and families. Whether you are a patient, family member or friend, these poignant stories are filled with anecdotes that you'll find helpful as you learn more about your or your loved one's disease. Each story provides insight and motivation for bravery and optimism as you and your loved ones celebrate being a survivor!
You'll also find stories of volunteers who are spreading awareness and raising funds for AA&MDSIF. Many are patients, family members and friends who have been touched in some way by a bone marrow failure disease.
Would you like to share your story? Email us at mystory@aamds.org or call Mike Breuer at (301) 279-7202 x111 and he'll be glad to give you more information.
Visit this page regularly for new stories, many featured in our monthly eInsider, that will touch your heart, give you comfort, and deepen your determination to fight these diseases.
At the time,
Luke Gane considered himself a typical sophomore. It was July 2008, and Luke was getting ready
for the all-important junior year of high school football season. He had his wisdom teeth removed and
afterwards, found himself spitting up blood.
It was...
“Cantering”
Physician Counts His Blessings
Written by Curtis Wuest
I am an 82-year-old retired family physician, and I was
diagnosed with MDS in May 2007. Before a routine follow-up
appointment with my cardiologist at the University of Iowa Hospitals and
Clinics...
My
Participation in the Los Angeles
Hope, Steps & A Cure Walk
My journey
and commitment with the Aplastic Anemia & MDS International Foundation took
off immediately the day I discovered them.
My daughter Mia was diagnosed with Severe Aplastic Anemia in 2009, at...
On my
daughter Emily Matilda's 9th birthday, June 12, 2004, we attended her
gymnastics team award gala where the approximately 300 people attending all
sang happy birthday to her. Two days later my smart,funny, beautiful, kind and
very athletic daughter had a routine physical (...
Why I Participate in
the Hope, Steps, and A Cure Walks for AAMDSIF
When my beautiful and talented 15 year-old niece was
diagnosed with Severe Aplastic Anemia in 2009, the entire family was bewildered,
and although we stayed positive, we were frightened. No one knew what...
Young Transplant
Survivor Helps Keep Her Parents Strong
from Eulalia Lovelace:
On April 1, 2008 my daughter, Mychaela Lovelace was
diagnosed with aplastic anemia. Prior to her diagnosis, our five-year old had a
lot of red dots (petechiae) and bruising on her body. A...
My son Matthew Lee Sprain is a severe aplastic anemia
survivor.
In
October, 2008, Matthew was diagnosed with severe aplastic anemia at the age of
4. As a family, we were devastated and
frightened. Humbled to our knees, we
prayed for Matthew’s healing and a...
This story is being shared by Kerry Jean’s mother, Nellda Friend.
A special wedding took place on July 9, 2011 in the little
country town of Leesburg, Ohio. In addition to marrying her husband, Andy, the
bride, Kerry Jean Friend, received an added bonus. Also present for...
What started as the anticipation
of our 19-year old freshman daughter, Haley, coming home that day for Easter,
suddenly became the fight for her life…..
It was April
14, 2006 when my husband, Steve and I received the dreaded phone call from
Haley’s attending physician at the...
I am involved in Hope, Steps & A Cure Walk San Antonio
because our oldest son, Garrett John Hamm, was diagnosed with aplastic anemia
at the age of 16 in August 1985. We were
stationed at Sheppard AFB in Wichita Falls, Texas at the time, and doctors there
thought that...
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