Medical Resources

You can learn more about many aspects of living with bone marrow diseases through the following links. Be sure to read and view the information and video tutorial from the National Library of Medicine for helpful guidelines in searching the Internet and evaluating medical information.

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Blood and Transplant Information

Blood and Transplant Information

Understanding your complete blood count
Download this patient information pamphlet (in pdf) from the NIH.

Lab Tests Online
A public resource maintained by laboratory professionals to explain your tests and their results. Online access only.

America's Blood Centers
(202) 393-5725
America's Blood Centers (ABC) is North America's largest network of non-profit, community blood centers.

American Association of Blood Banks
(301) 907-6977
An international association working to advance transfusion & cellular therapies worldwide.

American Red Cross
(800) 733-2767

Asians for Miracle Marrow Matches
(888) 236-4673
Donor recruitment & patient support for Asian's in need of a bone marrow transplant.

BMT InfoNet
(888) 597-7674
Provides information and support to those undergoing a bone marrow transplant.

Cord Blood Donor Foundation
(650) 635-1452
Promotes education & awareness about using umbilical cord blood stem cells as a treatment for disease.

Cord Blood Donor Foundation
C.W. Bill Young Department of Defense Marrow Donor Program
A marrow donor program within the Department of Defense that supports military personnel who volunteer as marrow donors." 

National Bone Marrow Transplant Link
(800) 546-5268
This site is designed to help patients, their caregivers and families understand and deal with the emotional and practical aspects of transplants and post-transplant concerns.

National Marrow Donor Program
(800) 627-7692
The National Marrow Donor Program (NMDP) helps people who need a life-saving marrow or blood cell transplant.

dictionaries

Dictionaries and Encyclopedias

MedlinePlus medical encyclopedia
Over 4,000 articles about diseases, tests, symptoms, injuries, and surgeries.  Also links to a searchable medical dictionary.

CancerWeb online medical dictionary
Sponsored by the CancerWEB project.

Merriam Webster medical dictionary
Part of Intelihealth sponsored by Aetna and Harvard Medical Schools. 

drugs

Drug Information

Food & Drug Administration (FDA)
(888) 463-6332
Searchable database with the latest information on drugs.

MedlinePlus Drug Information
Prescription and over-the-counter medication information.

Office of Orphan Products Development
Dedicated to promoting the development of products that demonstrate promise for diagnosis and/or treatment of rare diseases or conditions.

NIH

National Institutes of Health

MEDLINEPlus
Online database by National Library of Medicine and NIH.

PubMed
PubMed is a service of the National Library of Medicine that includes over 16 million citations from MEDLINE and other life science journals.

National Cancer Institute (NCI)
(800) 422-6237
Cancer-related information of all kinds.

National Center for Complimentary and Alternative Health (NCCAM)
(888) 644-6226

National Heart, Lung and Blood Institute (NHLBI)
(301) 592-8573
Information for professionals and the general public about heart and vascular diseases, lung diseases, blood diseases and resources, and sleep disorders.

Office of Rare Diseases
(301) 402-4336
Information center on 6,000 designated rare diseases.

ToxNet
888.FINDNLM
Databases on toxicology, hazardous chemicals, environmental health, and toxic releases.

Resources

Physician and Hospital Directories 

American Hospital Directory
Online database with information on over 6,000 hospitals.

American Society of Hematology - Find a Hematologist
(202) 776-0544
Service offered by ASH for patients looking for doctors.

Hospice Directory
(800) 658-8898
National Hospice and Palliative Care organizational database.

U.S. News: Hospital Directory
Every year US News rates the top hospitals.

Veterans Health Administration
(800) 827-1000
Veterans can locate nearest facility and learn about their medical options.

Who's Certified
(847) 491-9091
Database sponsored by the American Board of Medical Specialties.

Professional Organizations

American Society of Hematology
(202) 776-0544
Web site contains a variety of resources for patients.

American Society of Pediatric Hematology/Oncology
(847) 375-4716
Provides a link to find doctors as well as links to patient support groups.

National Comprehensive Cancer Network
(888) 909-6226
NCCN treatment guidelines for patients covers varied subjects including fatigue & neutropenia.

Other organizations

Related Disorders

American Cancer Society
(800) ACS-2345
Largest advocacy & support group for cancer patients.

Cooley's Anemia Foundation
(800) 522-7222
Advocacy group for genetic blood disorder thalassemia.

Diamond Blackfan Anemia
(716) 674-2818

Fanconi Anemia
(800) 828-4891

Inherited Bone Marrow Failure Syndromes (NCI)
Project by the National Cancer Institute to study rare inherited BMF syndromes.

Iron Disorders Institute
(864) 292-1175
Source of information for any iron disorder.

Leukemia & Lymphoma Society
(800) 955-4572
The Leukemia & Lymphoma Society is the world's largest voluntary health organization dedicated to funding blood cancer research, education, and patient services.

NORD (National Organization of Rare Disorders)
(800) 966-6673
Advocacy & support group for rare diseases.

Platelet Disorder Support Association
(888) 528-3538