Led by Jo Alley and her husband, Ron, this dedicated group of volunteers has raised almost $125,000 through their fundraising events over the past 15 years including their Boot, Scoot and Boogie evening and the sales of holiday cards raising awareness about bone marrow failure bone marrow failure: A condition that occurs when the bone marrow stops making enough healthy blood cells. The most common of these rare diseases are aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH). Bone marrow failure can be acquired (begin any time in life) or can be… diseases. This tight-knit group of patients, families and friends continues its work in memory of loved ones lost to these diseases including Jo and Ron’s son Shawn – a 25-year aplastic anemia aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is low. Most… survivor who lost his battle in 2010.