Personalized Search
Displaying 1 - 20 of 109
-
2024 Patient and Family Conference in Los Angeles Recordings will be coming soon! The conference offered special post-transplant sessions. Conference Location: Cooper Auditorium @ City of Hope 1500 E. Duarte Rd Duarte, CA 91010 Parking: Lots HV or G The parking lots are next to the Hope Village Hotel located on the Northwest corner of the City of Hope Campus. (Duarte Rd and Village Rd) Friday...Conference Event last updated April 25, 2024.Node ID (debugging only): 10461
-
Dr. Mikkael Sekeres describes why patients should request a second opinion about their bone marrow failure disease or blood cancer. He also shares his own perspective about asking for a second opinion, recommending that patients do select this option.Podcast Episode last updated September 21, 2023.Node ID (debugging only): 10335
-
Thank you for attending the 2023 Salt Lake City Patient and Family Conference. We will keep uploading presentations as we receive them, please keep checking back for updates. Presentation Materials: Predisposition to Inherited Bone Marrow Failure Syndromes Aplastic Anemia and Non-Transplant Therapies MDS and Non-Transplant Therapies PNH and Non-Transplant Therapies Ask the...Conference Event last updated August 3, 2023.Node ID (debugging only): 10287
-
Driven by his mother’s advice and his father’s memory, Richard M. Stone, MD, rose to become a global leader in leukemia care and research. Growing up, Richard M. Stone, MD, thought he was going to be an attorney like his father, but his direction in life changed when he was 15. His father, Benjamin, developed kidney cancer when Stone was just 5 years old, and 10 years later, the disease...Article last updated May 30, 2023.Node ID (debugging only): 9935
-
When should patients be vaccinated, and with which version of the COVID-19 Vaccine? Learn all about how each type of vaccine works and which patients with bone marrow failure diseases should be vaccinated.Podcast Episode last updated May 30, 2023.Node ID (debugging only): 10096
-
What is "Chemo Brain" and how is it managed? Find out the best approaches for dealing with this common side effect in this recording with Dr. Jorg Dietrich.Podcast Episode last updated May 30, 2023.Node ID (debugging only): 10109
-
Dr. Mikhail Kogan, Medical Director of the GW Center for Integrative Medicine, discusses incorporating Integrative Medicine into a patient's treatment plan. He describes using yoga, meditation, and other techniques to help patients while they are in treatment for bone marrow failure conditions.Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8349
-
Kat hears patients ask: "I have this bone marrow failure problem ... how is this going to affect me and loved ones? What does this mean for my life?" Discover how Kat helps walk patients through diagnosis, treatment, and survivorship.Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8211
-
Can sleep affect your treatment for bone marrow failure diseases? Dr. Asefa Mekonnen explains why sleep is important for patients as well as when to tell your doctor that you aren't sleeping well. Check this out!Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8208
-
Nancy has worked with hundreds of patients in her career, guiding patients through decision-making and treatment. Discover her best advice for bone marrow failure patients and caregivers in this podcast.Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8187
-
Senior Director of Health Professional Programs, Alice Houk, describes how your health care team can become your Partner toward health in this interview.Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8175
-
This is the first episode of our new podcast. Leigh Clark, Patient Educator, describes the bone marrow failure journey and how AAMDSIF can help!Podcast Episode last updated November 2, 2022.Node ID (debugging only): 8157
-
Key Points Bone marrow transplantation with posttransplantation CY in severe aplastic anemia results in rapid hematopoietic reconstitution. Rates of graft-versus-host-disease-free survival in treatment-naïve and refractory disease compare very favorably to standard therapies. (Continued at the link)Article last updated April 6, 2022.Node ID (debugging only): 8902
-
Want to learn about scientific topics without needing a PhD? Check out the Science Simplified blog from TESS Research Foundation! Dr. Tanya Brown, PhD, works with researchers to make science accessible and empower rare disease community members with scientific knowledge. Dr. Brown has over a decade of experience in neurodevelopmental research and is currently the Scientific Director for TESS...Article last updated February 18, 2022.Node ID (debugging only): 9917
-
The mRNA COVID-19 Vaccines Are Safe and Effective for Most Patients with Cancer For most patients with cancer, the mRNA COVID-19 vaccines are safe and effective. This article explains the results of the first study that evaluated the safety and effectiveness of the mRNA vaccines in patients with solid cancers, such as lung, breast, or prostate cancer. November 2021 – Lung Cancer Laura Morgan The...Article last updated January 24, 2022.Node ID (debugging only): 9849
-
Raising money for AAMDSIF through fundraising events also raises awareness for rare bone marrow failure diseases. Your participation by recruiting friends, family, and coworkers spreads the word and helps fund the mission of AAMDSIF.Sectioned page last updated April 18, 2024.Node ID (debugging only): 10336
-
Subscribers to the GVHD Interactive Provider Network mailing list receive: Updates about events and trainings Login information to participate in the online discussions Access to the ECHO platform Subscribers may opt out and unsubscribe at any time. Please find the required and optional fields below.Webform last updated April 12, 2024.Node ID (debugging only): 9953
-
AAMDSIF provides educational materials for patients and healthcare professionals written in plain language and reviewed by highly respected and recognized medical doctors who are experts in bone marrow failure diseases. If you are a patient: please fill out the form below and a complete information packet will be mailed to you free of charge. Alternatively you can...Webform last updated April 12, 2024.Node ID (debugging only): 8326
-
AAMDSIF receives support from corporate partners who invest in advancing our mission. Thanks to their financial contributions, we are able to provide answers, support, and hope to patients, their families, and healthcare professionals entrusted with providing quality care. AAMDSIF Corporate Partners provide financial and in-kind support of programming through sponsorships and grants. AAMDSIF...Page last updated April 4, 2024.Node ID (debugging only): 10356
-
AAMDSIF hosts Patient and Family Conferences around the United States each year. Conferences are free to attend and include presentations by the leading medical experts in rare blood cancers and bone marrow failure diseases. It is also an incredible and important opportunity for patients to connect with one another and share support, answers and hope. 2024 Conferences - Registration open!...Sectioned page last updated April 3, 2024.Node ID (debugging only): 10471