Patient and Family Conferences

AAMDSIF hosts Patient and Family Conferences around the United States each year. Conferences are free to attend and include presentations by the leading medical experts in rare blood cancers and bone marrow failure bone marrow failure: A condition that occurs when the bone marrow stops making enough healthy blood cells. The most common of these rare diseases are aplastic anemia, myelodysplastic syndromes (MDS) and paroxysmal nocturnal hemoglobinuria (PNH). Bone marrow failure can be acquired (begin any time in life) or can be… diseases. It is also an incredible and important opportunity for patients to connect with one another and share support, answers and hope.
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2026 Conferences 

Who should attend?

• Aplastic anemia Aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is low. Most… , PNH, MDS, MPN, and AML patients
• Those who are newly diagnosed or currently in treatment, as well as long-term survivors
• Caregivers, family members or friends
• Nurses and other healthcare professionals are also welcome

Why should you attend?

• Gain unprecedented access to top experts
• Get your questions answered
• Return home a wiser and better-equipped self-advocate
• Meet those who genuinely understand what you are going through
• Build a strong and supportive community
• Leave with a sense of optimism and hope for the future
• Mark your calendars now. Advance registration is always recommended.

What to Expect from AAMDSIF Conferences:

• An in-depth review of the current thinking on aplastic anemia, PNH, MDS, MPN,  and AML.
• Practical steps you can take to become an even stronger advocate for your best care and treatment.
• Practical strategies for improving your health and well-being in spite of your illness.
• Meet other patients and family members, join a Community Connection group in your area and discover our Peer Support Network.
• Learn how AAMDSIF can help you with this life-altering journey.

Need Help?

If you have questions regarding our conferences or registration, please call our conference information line at 301-279-7202 x 128 or email us at conference@aamds.org