living with disease | Page 5 | Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

living with disease

Volunteer

AAMDSIF depends on the commitment, creativity, talent and energy of its volunteers. They are our local ambassadors, and we rely on their event organizing skills to support patients, family and friends in their community. Their work also contributes to the Foundation's global mission to help

Mission and History

Since 1983, the Aplastic Anemia and MDS International Foundation has served the aplastic anemia, myelodysplastic disease syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure disease communities. In pursuit of our mission to provide answers, support, and hope, we provide programs and resources that empower patients and their families, advance research that speeds the search for new treatments and potential cures, promote high-quality care by educating healthcare providers, and ensure our patients’ voices are heard through awareness and advocacy.

Corporate Partners

AAMDSIF receives support from corporate partners who invest in advancing our mission. Thanks to their financial contributions, we are able to provide answers, support, and hope to patients, their families, and healthcare professionals entrusted with providing quality care.

"I Consider Myself Lucky:" New Mom Meghin Can Live her Life Now

Person's Name: 
Meghin Kiernan

On October 24th, 2022 I received the phone call that would change my life. Enjoying a ten minute bubble bath, I initially ignored the vibrating phone along the tub's porcelain edge. My husband had recently embarked on an overseas business trip, and for the first time I was parenting as a single parent. Exhausted, my throat sore, I had just put my seven month old son to bed and wanted nothing more than to snuggle into my cozy bed and sleep. I never did get to sleep. 

Bone Marrow Disease(s): 
Content source: