CCUS and MDS - Webinar for Patients
In this webinar, Drs. Kelly Bolton and Eytan Stein discuss CCUS (clonal cytopenia of undetermined significance) and the connection to MDS.
diagnosis
Conquering PRCA: a conversation with Ron Duncan, Patient Survivor
Ron had a sudden alert when he learned he had one of the rarest of diseases. Listen to this conversation to learn how he managed diagnosis, treatment, and survivorship in this episode.
Hepatitis-Associated Aplastic Anemia with Dr. Roma Rajput
Find out the relationship between Hepatitis and Aplastic Anemia in this episode with Dr. Roma Rajput.
Brian Anderson Explains Life, Treatment, and Surviving MDS
AAMDSIF Director of Patient Programs, Leigh Clark, asks Brian about his life before diagnosis, during "watch and wait," through transplant, to now. Listen here to his myelodysplastic syndromes, or MDS, patient journey.
Conversation with patient, Mario Rivera: His Experience with Aplastic Anemia
AAMDSIF Director of Patient Services, Leigh Clark, asks Mario about his journey with Aplastic Anemia. The conversation includes treatment and survivorship.
Evan's Life is Turned Upside Down by Diagnosis of PNH
Evan biked daily. He had no symptoms. The diagnosis was fast, but surprising. Evan shares his remarkable story in this episode.
FDA approval of Tibsovo with Dr. Amir Fathi
Here is a discussion about recent FDA approval of Tibsovo for Relapsed/Refractory MDS with Dr. Amir Fathi, who is an Associate Professor of Medicine at Harvard Medical School and the Director of the Leukemia Program at Massachusetts General Hospital.
Medical Jargon Made Simple
Caregivers: What to Expect When Your Loved One is Diagnosed
In this webinar, Dr. Thota will discuss what caregivers can expect when their loved one is diagnosed- symptoms and side effects of disease and treatments.
Genetics and MDS
In this webinar, Jennie Vagher, certified genetic counselor, discusses hereditary or genetic predisposition to MDS. Jennie is an expert in rare cancer predisposition syndromes.