paroxysmal nocturnal hemoglobinuria (PNH) | Page 15 | Aplastic Anemia and MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

Complement in paroxysmal nocturnal hemoglobinuria: exploiting our current knowledge to improve the treatment landscape

Mastellos DC, Ricklin D, Yancopoulou D, Risitano A, Lambris JD
Primary Author: 
Mastellos DC
Journal Title: 
Expert Rev Hematol
Original Publication Date: 
Sep 2014

Patient, Educator, and Volunteer

Person's Name: 
Stephen King

A PNH survivor for more than 25 years, Stephen King speaks about his life as a patient and an advocate in both formal and informal roles -- and offers advice for newly diagnosed PNH patients.

 “I’m an engineer with a problem-solving orientation,” says the medical software manager from Atlanta, Georgia. “After my diagnosis, I thought, now that you know what it is, let’s fix it. It took a little time to sink in that there was no quick fix, and I had to learn more about it.”

Early Diagnosis, Treatment and Emphasis on Self-Advocacy

Content source: 

Paroxysmal nocturnal hemoglobinuria clones in children with acquired aplastic anemia: a multicentre study

Timeus F, Crescenzio N, Longoni D, Doria A, Foglia L, Pagliano S, Vallero S, Decimi V, Svahn J, Palumbo G, Ruggiero A, Martire B, Pillon M, Marra N, Dufour C, Ramenghi U, Saracco P
Primary Author: 
Timeus F
Journal Title: 
PLoS One
Original Publication Date: 
Jul 2014

A multicentre study evaluating the presence of glycosil phosphatidyl-inositol (GPI)-negative populations was performed in 85