The speed of science often feels extremely slow for patients and families looking for a cure to a rare disease. Many treatment options available today are a result of many years of painstaking scientific discovery. AA&MDSIF believes in the benefits of research for the patients that rely on us for answers, support, and hope. Research is an essential element of that hope.[TODO]
I believe that a story is the shortest distance between two people. While this is my story, it is not just mine, and I did not do any of this alone. In April 1983, my husband Joe and I were 25 years old and attending to the required pre-marital blood work. Next thing we knew, we were sitting in a doctor’s office because my blood counts were abnormally low. They told us there was something wrong, but they didn’t know what it was.