paroxysmal nocturnal hemoglobinuria (PNH) | Page 12 | Aplastic Anemia and MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

Biting into the Elephant

Person's Name: 
Ellen O. Kalinosky

I believe that a story is the shortest distance between two people. While this is my story, it is not just mine, and I did not do any of this alone. In April 1983, my husband Joe and I were 25 years old and attending to the required pre-marital blood work. Next thing we knew, we were sitting in a doctor’s office because my blood counts were abnormally low. They told us there was something wrong, but they didn’t know what it was.

Dr. Heather Vega: Doctor Helps Determine Her Own Aplastic Anemia and PNH Diagnosis

Person's Name: 
Heather Vega

“I was fortunate to have a medical background, because with it I was able to help diagnose myself with