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Advancing Research Through the Global PNH Patient Registry

Presenter(s): 
Topic(s): 
Paroxysmal Nocturnal Hemoglobinuria (PNH)
Presentation Date: 
Wed, 05/12/2021 - 10:00am (EDT)

The Global PNH Patient Registry is a collaborative effort between the Aplastic Anemia and MDS International Foundation (AAMDSIF), industry sponsors, and the National Organization for Rare Disorders (NORD) to study paroxysmal nocturnal hemoglobinuria (PNH). It supports research, provides insight on treatment for the PNH community, and helps understand the progression of PNH over time. Join us for this webinar to learn more about this patient registry.

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