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  1. American Society of Hematology Annual Meeting 2014

    ... Board, discusses the most important research about PNH ( paroxysmal nocturnal hemoglobinuria ) reported at the 2014 American Society of ...

    Page last updated 03/11/2015 - 3:10pm.

  2. What You Can Do for Awareness Week

    ... Myelodysplastic Syndromes (MDS)   Paroxysmal Nocturnal Hemoglobinuria (PNH)   Tell at least one new person each ...

    Page last updated 12/17/2014 - 9:40am.

  3. AA&MDSIF Julia Malsin Research Fund

    Mike and Heather Malsin established the Julia Malsin Research Fund in memory of their daughter Julia who passed away from aplastic anemia in 2012.  Julia had been battling a sinus infection, but when ...

    Page last updated 10/16/2014 - 9:49am.

  4. Clinical Trials Report for April 2014

    ... NCT00940602 Search for a list of current paroxysmal nocturnal hemoglobinuria studies actively recruiting patients. No PNH studies ...

    Page last updated 04/18/2014 - 3:36pm.

  5. Milwaukee Hope, Steps & A Cure Walk: May 31, 2014

    The 3rd Annual Milwaukee Hope, Steps & A Cure Walk was a huge success!  Notable Numbers   55+ Walkers and Runners 6 Walk Teams over $7,200 raised    Brandi Wr...

    Page last updated 07/17/2014 - 11:44am.

  6. Patient Education Materials

    ... treatment. Your Guide to Understanding PNH ( Paroxysmal Nocturnal Hemoglobinuria ) Get the facts and information you need on ...

    Page last updated 11/06/2013 - 4:28pm.

  7. 2014 Debono Memorial Scholarship Winners

    Congratulations to the  2014 Matthew Debono Scholarship winners: Name Hometown University Kristen Cavalleri North Tonawanda, NY Niagara University ...

    Page last updated 07/01/2014 - 8:22pm.

  8. Regis Peffault deLatour, MD, PhD

    The role of Unfolded Protein Response in PNH Original Research Center:  National Institutes of...

    Grant Recipient last updated 05/14/2014 - 3:41pm.

  9. Matthew J. Walter, MD

    The role of U2AF1 mutations in the pathogenesis of myelodysplastic syndromes Original Research Center:  ...

    Grant Recipient last updated 08/18/2014 - 10:07am.

  10. Caring for the Caregiver

    Whether you provide physical, social, emotional, or household support, caregiving for rare and chronic bone marrow failure diseases is not an easy task. It can be stressful for caregivers, patients, and other famil...

    Page last updated 10/13/2014 - 5:06pm.