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  1. Fludarabine Phosphate and Total Body Irradiation Followed by a Donor Peripheral Stem Cell Transplant in Treating Patients With Myelodysplastic Syndromes or Myeloproliferative Disorders

    ... myelodysplastic syndromes (MDS) paroxysmal nocturnal hemoglobinuria (PNH) ...

    Clinical Trial last updated 04/28/2016 - 2:45pm.

  2. Kim-Hien T. Dao, DO, PhD

    Beta-catenin is a molecular target of the Fanconi anemia core complex Original Research Center:  ...

    Grant Recipient last updated 10/01/2012 - 10:46am.

  3. Caregivers Resources

    Caregiver Resources in the Ask Medicare Toolkit are designed to help caregivers address challenging issues and work effectively with Medicare to ensure their family members and friends receive the best poss...

    Page last updated 12/04/2014 - 10:13am.

  4. What You Can Do for PNH Awareness Week

    ... marrow failure disease.  Educate yourself about paroxysmal nocturnal hemoglobinuria (PNH) on our Web site so you learn more about what ...

    Page last updated 09/20/2016 - 2:16pm.

  5. The Transplantation Procedure

    What medical tests and exams happen before a stem cell transplant ? Your doctors will want to make sure you're healthy enough to have a stem cell transplant. They also will want to find out whether you h...

    Page last updated 05/14/2015 - 10:39am.

  6. Why Research is Important: Understanding Research Articles Part I

    The medical care we enjoy today is built upon decades  of effort by physicians, researchers, and other medical professionals investigating the causes of, and potential treatments for disease. Insights provided by p...

    Page last updated 06/24/2015 - 1:51pm.

  7. Clear Communication with Your Provider

    Today, limited appointment times, overwhelming and confusing volumes of information available on the Internet, coupled with the stress of having a rare disease diagnosis, might mean patients don't always get the an...

    Page last updated 04/30/2015 - 3:15pm.

  8. Nurse's Corner Spring 2015: Patient Advocacy – Is There a “Magic Formula?”

    Like many of us, I’ve been told that I’m a great advocate for my patients. But what does this really mean?  How does one articulate what nursing advocacy is?  Is there a “magic formula” for being an advocate? In...

    Page last updated 04/23/2015 - 10:52am.

  9. Hideki Makishima, MD, PhD

    ... reveals stepwise mutation acquisition in paroxysmal nocturnal hemoglobinuria . J Clin Invest doi:10.1172/JCI74747DS1 (2014). 2. ...

    Bio last updated 03/11/2016 - 1:41pm.

  10. Zhe Yang, PhD

    Structural insights into deregulated epigenetic mechanisms and DNA demethylation in MDS Original Research Center:  ...

    Grant Recipient last updated 12/06/2013 - 4:25pm.