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  1. ASH 2012 - Reviewing MDS Progress from Research and Clinical Perspectives

    We hear that there is increasing interest and research in the role that genes and genetic mutations have in affecting the course of MDS. Were there any studies of particular significance in this area? Yes, ...

    Interview last updated 02/01/2013 - 4:22pm.

  2. BMT Meant 'It Could Finally Be Over '

    ... found that I had also developed paroxysmal nocturnal hemoglobinuria (PNH). I had become transfusion dependent and the doctors ...

    Patient Chronicle last updated 05/10/2016 - 3:28pm.

  3. Recommended Reading

    Caregiving And Thou Shalt Honor: The Caregiver's Companion, edited by Beth Witrogen McLeod, 464 pp, Rodale Press, 2003.  A complete reference for family caregivers, edited by the founder of the N...

    Page last updated 05/07/2013 - 1:41pm.

  4. Coordinated Care: MDS Research and Treatment Centers and Community Hematologists Work Together for Complete Patient Care

    What does the term “coordinated care” mean, and what advantages may it offer for MDS patients? There is really no formal, widely accepted defi nition or model for this term. But for most, the term “coordinat...

    Interview last updated 07/23/2012 - 4:56pm.

  5. RA101495

    ... Disease(s):  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Drug last updated 02/23/2017 - 10:59am.

  6. Transplantation Basics

    Is it correct to say that stem cell transplantation is a process in which stem cells are gathered from either bone marrow , umbilical cord blood, and peripheral blood of a suitable donor and are plac...

    Interview last updated 04/05/2013 - 2:33pm.

  7. Pegylated Interferon Alfa-2a Salvage Therapy in High Risk Polycythemia Vera (PV) or Essential Thrombocythemia (ET)

    ... > 1.5 mg/ml No detectable PNH ( paroxysmal nocturnal hemoglobinuria ) clone where tested Concurrent hormonal ...

    Clinical Trial last updated 04/29/2016 - 9:59am.

  8. PNH Research and Support Foundation Donations

    Make a tax-deductible gift to support the work of the PNH Research & Support Foundation TODAY.  Your gift will support research, patient education, and support services. Remember a loved one, celebrate a...

    Webform last updated 09/23/2014 - 10:51am.

  9. What You Can Do for PNH Awareness Week

    ... Educate yourself about paroxysmal nocturnal hemoglobinuria (PNH) on our Web site so you learn more about what you can ...

    Page last updated 09/20/2016 - 2:16pm.

  10. Agent Orange, United States Military Veterans, and Myelodysplastic Syndromes

    This article was originally published in the MDS Beacon by David Steensma, MD, FACP.  Dr. Steensma is a physician at the Dana-Farber Cancer Institute in Boston and an associate professor in the Department of Med...

    Page last updated 12/19/2013 - 10:58am.