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  1. Catherine's Craft Fair

    Catherine MacLean started Catherine’s Craft Fair in 2000 as a 9 year old girl. When Catherine underwent drug therapy in 2000 to put her aplastic anemia ...

    Fundraising Event last updated 11/02/2012 - 3:40pm.

  2. 2014 Debono Memorial Scholarship Winners

    Congratulations to the  2014 Matthew Debono Scholarship winners: Name Hometown University Kristen Cavalleri North Tonawanda, NY Niagara University ...

    Page last updated 07/01/2014 - 8:22pm.

  3. Annual Wing Fling

    The Annual Wing Fling is organized by Kim Fernandes-Huff and the Fernandes family in memory of Kim's brother Michael Fernandes who passed away from MDS. It...

    Fundraising Event last updated 10/31/2012 - 3:51pm.

  4. AK579 (COBALT)

    ... Disease(s):  paroxysmal nocturnal hemoglobinuria (PNH) Associated ...

    Clinical Trial last updated 09/14/2016 - 10:39am.

  5. MDS (Myelodysplastic Syndromes) in the News

    Dr. Gail Roboz returns to Good Morning America to answer questions the “GMA” staff and fans have about Robin’s treatment and her recovery process as she begins her bone marrow transplant to treat MDS...

    Page last updated 09/20/2012 - 4:52pm.

  6. “Mom, it’s too late. I’m dying.”

    ... the doctor called and said he had paroxysmal nocturnal hemoglobinuria (PNH) We had never heard of this. Our friend, Kevin, stepped ...

    Patient Chronicle last updated 04/26/2016 - 11:43am.

  7. MDS is a Complicated Group of Disorders

    We were saddened to learn of the death of noted author and filmmaker, Nora Ephron, after a six year battle with myelodysplastic syndromes (MDS), and we offer our condolences to her family and friends. V...

    Page last updated 06/27/2012 - 1:51pm.

  8. Together, our impact can be far greater

    ... Anemia Myelodysplastic Syndromes Paroxysmal Nocturnal Hemoglobinuria Acute Myeloid Leukemia Other If "other", please ...

    Webform last updated 09/22/2016 - 2:26pm.

  9. Fludarabine Phosphate and Total Body Irradiation Followed by a Donor Peripheral Stem Cell Transplant in Treating Patients With Myelodysplastic Syndromes or Myeloproliferative Disorders

    ... syndromes (MDS) paroxysmal nocturnal hemoglobinuria (PNH) Associated ... 7+3, HIDAC, or Mylotarg) Paroxysmal nocturnal hemoglobinuria (PNH): Patients with the non-aplastic form of PNH (cellular ...

    Clinical Trial last updated 04/28/2016 - 2:45pm.

  10. Transplantation


    Page last updated 01/20/2015 - 4:45pm.