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  1. Local TV covers AAMDSIF Peer Support Networker

    ... tests revealed that he had paroxysmal nocturnal hemoglobinuria (PNH).   PNH is an acquired rare disorder characterized ...

    Article last updated 11/28/2016 - 3:21pm.

  2. Fighting PNH with Perseverance and Spirit

    ... Bunny Williams was diagnosed with paroxysmal nocturnal hemoglobinuria (PNH) in the spring of 2000. Her symptoms were fatigue, ...

    Patient Chronicle last updated 04/26/2018 - 10:49am.

  3. Heroic avatars for rare disease patients

    ... hemolytic uremic syndrome (aHUS), paroxysmal nocturnal hemoglobinuria (PNH), hypophosphatasia (HPP), and lysosomal acid lipase ...

    Article last updated 09/14/2016 - 12:53pm.

  4. Assessment of Human Antihuman Antibodies to Eculizumab After Long-Term Treatment in Patients With Paroxysmal Nocturnal Hemoglobinuria

    ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 04/29/2016 - 10:20am.

  5. Self-injected PNH therapy on the horizon

    ... self-injected therapy Coversin for paroxysmal nocturnal hemoglobinuria (PNH), behind intravenous (I.V.) Soliris ( eculizumab ...

    Article last updated 07/07/2016 - 9:40am.

  6. Biomarkers for predicting clinical response to immunosuppressive therapy in aplastic anemia

    ... counts, cytokines, gene mutations, paroxysmal nocturnal hemoglobinuria (PNH), and telomere length (TL). While previous ...

    Research Article last updated 06/22/2016 - 10:19am.

  7. Clonal hematopoiesis in acquired aplastic anemia

    ... of late clonal disorders, including paroxysmal nocturnal hemoglobinuria (PNH) and myelodysplastic syndromes (MDS)/acute ...

    Research Article last updated 06/22/2016 - 10:18am.

  8. AAMDSIF to make news at ASH Conference

    ... MDS. One such grant to study PNH ( paroxysmal nocturnal hemoglobinuria ) went to Dr. David Araten, assistant professor in the ...

    Article last updated 12/01/2016 - 7:49am.

  9. Daria Babushok, MD, PhD

    ... that lead to the development of Paroxysmal Nocturnal Hemoglobinuria and those that cause the loss of immune recognition. The ... blood disorders”)—such as Paroxysmal Nocturnal Hemoglobinuria or myelodysplastic syndrome. My research is aimed at ...

    Grant Recipient last updated 01/12/2018 - 9:44am.

  10. PNH - Basics

    ... Paroxysmal nocturnal hemoglobinuria ( PNH ) is a rare blood disease that causes red blood ... The name paroxysmal nocturnal hemoglobinuria comes from: Paroxysmal - means "sudden and irregular" ...

    Topic section last updated 04/05/2016 - 4:02pm.