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  1. Barry Gore

    ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    "Like You" Patient Story last updated 04/26/2018 - 3:09pm.

  2. Daria Babushok, MD, PhD

    ... that lead to the development of Paroxysmal Nocturnal Hemoglobinuria and those that cause the loss of immune recognition. The ... blood disorders”)—such as Paroxysmal Nocturnal Hemoglobinuria or myelodysplastic syndrome. My research is aimed at ...

    Grant Recipient last updated 01/12/2018 - 9:44am.

  3. Zonal cutaneous ulceration and necrosis of the lower abdomen due to cutaneous thrombosis associated with paroxysmal nocturnal hemoglobinuria

    ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 11/02/2016 - 10:35am.

  4. Professionals

    Resources Health care providers are the primary source of information for their patients, but they too need access to factual and...

    Page last updated 05/03/2018 - 2:28pm.

  5. Evaluation of efficacy of alemtuzumab in 5 patients with aplastic anemia and/or myelodysplastic neoplasm

    ... responding patients, a concomitant paroxysmal nocturnal hemoglobinuria (PNH) clone was detected before therapy. One ...

    Research Article last updated 11/01/2016 - 1:56pm.

  6. AAMDSIF and PNH Foundation To Merge

    ... in helping patients with PNH ( paroxysmal nocturnal hemoglobinuria ), a rare bone marrow failure disease. The ...

    Article last updated 11/01/2016 - 10:05am.

  7. Request Educational Materials

    ... Aplastic Anemia (French) Paroxysmal Nocturnal Hemoglobinuria (PNH) Paroxysmal Nocturnal Hemoglobinuria (PNH) (Spanish) Paroxysmal Nocturnal Hemoglobinuria ...

    Webform last updated 05/03/2018 - 2:41pm.

  8. Local TV covers AAMDSIF Peer Support Networker

    ... tests revealed that he had paroxysmal nocturnal hemoglobinuria (PNH).   PNH is an acquired rare disorder characterized ...

    Article last updated 11/28/2016 - 3:21pm.

  9. Heroic avatars for rare disease patients

    ... hemolytic uremic syndrome (aHUS), paroxysmal nocturnal hemoglobinuria (PNH), hypophosphatasia (HPP), and lysosomal acid lipase ...

    Article last updated 09/14/2016 - 12:53pm.

  10. Assessment of Human Antihuman Antibodies to Eculizumab After Long-Term Treatment in Patients With Paroxysmal Nocturnal Hemoglobinuria

    ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 04/29/2016 - 10:20am.