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  1. Successful Treatment of Ascites using a Denver<sup>®</sup> Peritoneovenous Shunt in a Patient with Paroxysmal Nocturnal Hemoglobinuria and Budd-Chiari syndrome

    ... with aplastic anemia and paroxysmal nocturnal hemoglobinuria at 43 years of age and treatment with cyclosporin A was ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 11/02/2016 - 2:50pm.

  2. Valeria Visconte, PhD

    ... Paroxysmal nocturnal hemoglobinuria (PNH) is a stem cell disorder caused by a mutation ...

    Grant Recipient last updated 07/27/2018 - 11:55am.

  3. Positive Impact of Eculizumab Therapy on Surgery for Budd-Chiari Syndrome in a Patient with Paroxysmal Nocturnal Hemoglobinuria and a Long-Term History of Thrombosis

    ... Paroxysmal nocturnal hemoglobinuria (PNH) is associated with severe end-organ damage and a high ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 11/02/2016 - 2:49pm.

  4. Development of a disease-specific quality of life questionnaire for patients with aplastic anemia and/or paroxysmal nocturnal hemoglobinuria (QLQ-AA/PNH)-report on phases I and II

    ... aplastic anemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) are interrelated ultra-rare diseases. Quality of life ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 11/28/2016 - 11:40am.

  5. Foundation Update - June 2016

    ... syndromes (MDS), and paroxysmal nocturnal hemoglobinuria (PNH). The two-year grants have helped create new ...

    Article last updated 10/09/2017 - 2:54pm.

  6. Foundation Update - June 2017

    ... syndromes (MDS), and paroxysmal nocturnal hemoglobinuria (PNH). The two-year grants have contributed to new insights ...

    Article last updated 10/09/2017 - 2:42pm.

  7. Selectivity of C3-opsonin targeted complement inhibitors: A distinct advantage in the protection of erythrocytes from paroxysmal nocturnal hemoglobinuria patients

    ... Paroxysmal nocturnal hemoglobinuria (PNH) is characterized by complement-mediated cell lysis due ... Diseases:  paroxysmal nocturnal hemoglobinuria (PNH) ...

    Research Article last updated 04/29/2016 - 12:58pm.

  8. Foundation Update - September 2016

    ... to join in the fight against paroxysmal nocturnal hemoglobinuria (PNH). Learn more about the walk and Breakfast with ...

    Article last updated 10/09/2017 - 2:50pm.

  9. 2015 Chicago Patient and Family Conference

    Teaser Text:  Meet us in the “Windy City” for the 2015 regional patient and family conference. Event Date:  Sat, 10/24/2015 - 8:30am ...

    Conference Event last updated 10/22/2015 - 9:47am.

  10. 2015 Cleveland Patient and Family Conference

    Teaser Text:  Meet us in “Believe-land” for the 2015 regional patient and family conference. Event Date:  Sat, 05/02/2015 - 8:30am to...

    Conference Event last updated 05/12/2015 - 2:44pm.