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  1. Foundation Update - April 2017

    ... WANTED: PNH Participants for Research Training Seminar AAMDSIF's Patient Advisory Council on Clinical Trials (PACCT+) was formed in 2015, consisting of almost 20 ... training seminar where attendees will learn the basics of clinical and health services research. Currently, PACCT+ is seeking PNH ...

    Article last updated 10/09/2017 - 2:41pm.

  2. Haploidentical Hematopoietic Cell Transplant with Post-Transplant Cyclophosphamide and Peripheral Blood Stem Cell Grafts in Older Adults with Acute Myeloid Leukemia or Myelodysplastic Syndrome

    ... treatment option, especially if there is concern for clinical deterioration. A careful pretransplant evaluation and analysis of ... nonrelapse mortality in older adults are areas of ongoing research, and prospective studies are needed. ...

    Research Article last updated 11/14/2017 - 10:09am.

  3. Making Progress for Myelodysplastic Syndromes

    ... biggest challenge is finding enough patients to enroll in clinical trials that could help to advance treatment. But the Aplastic ... this by providing patients and patient data to support research. One of its efforts in this area is the MDS Clinical Research ...

    Article last updated 07/26/2017 - 10:25am.

  4. Foundation Update - July 2017

    ... June 17, the AAMDSIF Patient Advisory Council on Clinical Trials (PACCT+) members met in Arlington, Virginia for the second ... clinical trial design and the state of current MDS research. Learn more .   Young Aplastic ...

    Article last updated 10/09/2017 - 2:42pm.

  5. Gemtuzumab Receives New FDA Approval for Acute Myeloid Leukemia

    ... initially successful treatment. However, confirmatory clinical trials showed that the drug did not improve survival and was linked ... M.D., Ph.D., an AML specialist at Fred Hutchinson Cancer Research Center in Seattle. “The data for gemtuzumab benefiting at least some ...

    Research Article last updated 10/03/2017 - 12:56pm.

  6. Paroxysmal Nocturnal Hemoglobinuria (PNH)

    ... help people with PNH live longer. You may have seen older research saying that patients with PNH live an average of 15 to 20 years, but ... shot. Although case reports are not the same as randomized clinical trials, one case of hemolysis was severe enough to put the patient in ...

    Page last updated 07/20/2018 - 5:15pm.

  7. Foundation Update - October 2016

    ... specializing in MDS. The event focused primarily on MDS clinical updates, patient registries, transplantation and related bone ... Available Now: ASCO/EHA Research Summary The AAMDSIF 2016 ASCO/EHA Research ... presented at the 2016 meetings of the American Society of Clinical Oncology and the European Hematology Association, both held annually ...

    Article last updated 10/09/2017 - 2:49pm.

  8. PACCT+ Patient Group Meets and Learns Together

    ... On June 17, the AAMDSIF Patient Advisory Council on Clinical Trials (PACCT+) members met in Arlington, Virginia for the second ... clinical trial design and the state of current MDS research. By their selection and participation, PACCT+ participants are ...

    Article last updated 07/10/2017 - 11:12am.

  9. Clinical Trial Basics

    ... Clinical trials offer hope for many people and an opportunity to help ... What is a clinical trial? A clinical trial is a research study that involves volunteers who participate in carefully conducted ...

    Page last updated 01/20/2015 - 4:58pm.

  10. Computational Modeling and Treatment Identification in the Myelodysplastic Syndromes

    ... models serve as clinically relevant MDS cell lines for pre-clinical assays of investigational agents. MDS is an ideal disease for computational modeling and digital drug simulations. Current research is focused on establishing the prediction value of computational ...

    Research Article last updated 09/18/2017 - 9:46am.