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  1. PNH Research Retrospective

    ... think are the most impressive or significant advances in PNH research and treatment over the last five years? If you extend this back 30 ... persistently tried to understand this mechanism. Also the clinical side PNH is an active area of research. An example is the ...

    Interview last updated 04/14/2014 - 8:33am.

  2. Interviews with the Experts Pioneering Quality of Life Research for MDS Patients

    ... Dr. Abel is a 2010-2012 AA&MDSIF grant recipient for his research project, “Developing a Disease-Specifi c Measure for Quality of Life ... issues, to name a few. In discussing these issues with my clinical mentors, we thought it would be important to measure MDS-related ...

    Interview last updated 04/03/2014 - 2:13pm.

  3. ASH 2012 - Reviewing MDS Progress from Research and Clinical Perspectives

    ... We hear that there is increasing interest and research in the role that genes and genetic mutations have in affecting the ... Chronic Myeloid Disorders Working Group. In their research, they selected 111 genes known to be mutated in MDS and other ...

    Interview last updated 02/01/2013 - 4:22pm.

  4. Clinical Trials Report for October 2014

    ... We have highlighted some clinical trials that were opened since the beginning of 2014. There are many ... is being conducted at the H. Lee Moffitt Cancer Center & Research Institute, Tampa FL  Contact: Jennifer Cooksey, RN ...

    Page last updated 09/30/2014 - 10:05am.

  5. Finding a Trial

    Finding a Clinical Trial If you are considering joining a clinical trial, the first step is to talk with your doctor. He or she can help ... good option for you. Also, your doctor may already know of a research studies that are currently going on. Visit ...

    Page last updated 12/03/2014 - 9:20am.

  6. MDS and MDS/MPN: Past, Present, and Future 2014 American Society of Hematology (ASH) Satellite Symposium Summary for Patients and Families

    ... of this symposium was to bring together leaders in disease research and clinical practice to review the contributions of cytogentics and molecular ...

    Page last updated 03/13/2015 - 5:00pm.

  7. Research Retrospective for AA&MDSIF 30th Anniversary - Dr. Neal Young

    ... or significant advances in aplastic anemia research and treatment over the last five years since our 25th anniversary? If ... often do not realize that treatments are established in clinical protocols. When I ask an audience of hundreds of patients how many ...

    Interview last updated 05/08/2013 - 2:51pm.

  8. AA&MDSIF Survey Finds Differences Between MDS Patients and Health Care Professionals on Risks and Benefits of Treatment

    ... In 2013, AA&MDSIF coordinated with a group of MDS clinical research experts led by David Steensma, MD, of the Dana-Farber Cancer ...

    Page last updated 08/01/2014 - 11:02am.

  9. ASH 2012 - Reviewing MDS Progress from Research and Clinical Perspectives

    ... Were there any presentations at ASH 2012 on the clinical aspects of MDS that you think patients might find particularly ... MDS patients would most want to know about the state of research as it was presented and discussed at ASH 2012? I think it is ...

    Interview last updated 02/07/2013 - 1:28pm.

  10. Clinical Trials Report for April 2014

    ... We have highlighted some clinical trials that were opened since the beginning of 2014. There are many ... Mouths of Patients With Severe Aplastic Anemia This research is being done to describe the types of bacteria found in the mouths ...

    Page last updated 04/18/2014 - 3:36pm.