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  1. FAQs

    ... are most familiar with rare diseases. They work in a research and teaching setting and are up-to-date on both the standard therapies ... standard treatment options for your disease, including clinical trial options? Are you comfortable with the style and level of ...

    Topic section last updated 03/02/2016 - 11:42am.

  2. 2016 Scientific Symposium

    ... Convening International Experts at the Forefront of Research and Treatment of Bone Marrow Failure Disease ... for the highest priority directions for basic and clinical research needed to advance the field of research ...

    Page last updated 09/14/2015 - 1:40pm.

  3. Scientific Symposia

    ... Convening International Experts at the Forefront of Research and Treatment of Bone Marrow Failure Disease ... The program brought together leaders in disease research and clinical practice to explore solutions to improving the care of these patient ...

    Page last updated 12/17/2015 - 3:15pm.

  4. 2014 Scientific Symposium

    ... to discuss current areas of controversy, share recent research results and propose specific recommendations for the highest priority directions for basic and clinical research needed to advance the field.  Watch these ...

    Page last updated 04/23/2015 - 10:14am.

  5. Insider

    ... through patient education and support, to our activities in research and professional education programs. Each issue has details on ... Grant Recipients 2014 Conference and Webinar Plans Clinical Trials Social Media - Transforming the Way We Communicate 2013 ...

    Page last updated 07/25/2014 - 10:03am.

  6. Patrizia Ricci, PhD

    ... bedside Original Research Center:  University of Naples, Italy ... Current Position/Title:  Department of Clinical Medicine and Surgery ...

    Grant Recipient last updated 09/14/2016 - 2:42pm.

  7. Carlos M. De Castro, III, M.D.

    ... Center.  He joined the faculty of Duke in 1991.  His clinical research is focused on the care of patients with hematological malignancies ...

    Bio last updated 03/11/2016 - 1:41pm.

  8. Pregnancy in Bone Marrow Failure Disease

    ... College of Physicians and is an Associate Professor of Clinical Medicine at Einstein. Her teaching has been recognized with the Best Teacher Award by the hematology-oncology fellows. Her research has focused on a variety of blood conditions including anemia , ...

    Interview last updated 01/13/2017 - 9:28am.

  9. 2014 Scientific Symposium Interviews for Patients and Families

    ... to discuss current areas of controversy, share recent research results and propose specific recommendations for the highest priority directions for basic and clinical research needed to advance the field As a service to ...

    Page last updated 04/22/2014 - 9:10am.

  10. AAMDSIF Activities at ASH 2016

    ... with Cleveland Clinic. This year’s symposium, “Clinical Management of MDS/MPN:  A Mountain of Evidence for Treatment Selection in MDS/MPN” provided an in-depth review of research related to the biology, prognosis, natural history and therapeutic ... research grants and the Patient Advisory Committee for Clinical Trials  (PAACT+). ...

    Article last updated 12/14/2016 - 12:38pm.