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  1. Interviews with the Experts: Dr. Bart Scott on PNH

    ... does. Because it is so rare, it’s hard to design a clinical trial to study the disease in a comprehensive manner. So few have ... What you do think are the most important advances in research and treatment of PNH? By far the biggest advance was the FDA ...

    Interview last updated 09/23/2016 - 2:33pm.

  2. Interviews with the Experts Pioneering Quality of Life Research for MDS Patients

    ... Dr. Abel is a 2010-2012 AA&MDSIF grant recipient for his research project, “Developing a Disease-Specifi c Measure for Quality of Life ... issues, to name a few. In discussing these issues with my clinical mentors, we thought it would be important to measure MDS-related ...

    Interview last updated 04/03/2014 - 2:13pm.

  3. Tushar Bhagat, PhD

    ... Original Research Center:  Albert Einstein College of Medicine ... in the blood of patients with MDS and this predicts a poor clinical outcome. We demonstrate that changes in the stroma increase ...

    Grant Recipient last updated 06/08/2017 - 10:42am.

  4. MDS and Inflammation

    ... for this. What are some possible directions for future research? I think the most important take home message is that ... as a pill. These agents have been licensed to Celgene for clinical development in the years ahead. In the laboratory they work ... of lenalidomide (Revlimid®) from the laboratory to clinical trials, which went on to receive fast-track designation from the U.S. ...

    Interview last updated 02/14/2017 - 8:52am.

  5. Clone of Financials

    ... for Rare Diseases PNH Foundation Clinical Research Consortium Partners Cleveland Clinic Foundation ...

    Page last updated 03/31/2016 - 5:46pm.

  6. About AAMDSIF

    ... professionals, including being administrator of the MDS Clinical Research Consortium - a unique collaboration of six major academic medical ...

    Page last updated 11/15/2016 - 4:02pm.

  7. Clinical Trials Report for December 2014

    ... We have highlighted some clinical trials that were opened since the beginning of 2014. There are many ... Syndrome (MDS) The goal of this clinical research study is to compare how 2 different drugs, decitabine and ...

    Page last updated 11/25/2014 - 3:33pm.

  8. Judi Wilkinson

    ... blessed to have a DNA match with her sister, but NIH had no clinical trials on bone marrow transplantation at that time. If she ... Her online research was how Judi found out about AAMDSIF, and she’s been a part of the ...

    "Like You" Patient Story last updated 06/01/2017 - 10:33am.

  9. Clinical Trials Report for January 2015

    ... We have highlighted some clinical trials currently recruiting patients. Each has a specific purpose ... Syndrome (MDS) The goal of this clinical research study is to compare how 2 different drugs, decitabine and ...

    Page last updated 12/30/2014 - 10:45am.

  10. Eltrombopag Added to IST Yields Encouraging Results

    ... better. We do this with well-validated surveys in medical research and included these surveys in this study. Not many studies of aplastic ... of their quality of life improved right along with their clinical outcomes. What are they key points for newly diagnosed and longer ...

    Interview last updated 05/24/2017 - 7:44am.