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  1. Caring for the Caregiver

    ... emotional, or household support, caregiving for rare and chronic bone marrow failure diseases is not an easy task. It can be stressful ... on the blender gets the job done. But a chronic illness can be ongoing. Imagine if you left your blender running 24 hours ...

    Page last updated 10/13/2014 - 5:06pm.

  2. Resources to Help

    ... (800) 366-7741 Offers help to patients with chronic myelogenous leukemia. If you have access to insurance through COBRA, a ... by and for young women in their teens. A section under "Illness and Disability" addresses many questions and concerns expressed in this ...

    Topic section last updated 09/28/2017 - 11:58am.

  3. Caring for the Caregiver

    ... affect the immune system, placing caregivers at risk for chronic illness , insomnia, anxiety and depression,” says Jane Meier Hamilton, RN, ...

    Topic section last updated 03/16/2016 - 2:33pm.

  4. Palliative Care: What it really means for patients with Bone Marrow Failure Diseases

    ... of life for patients and families facing serious or chronic illness — whatever the diagnosis or prognosis. A palliative approach adds ...

    LMS Item last updated 06/10/2016 - 1:24pm.

  5. What are clinical trials and how can I learn more about them?

    ... care ) trials to improve the comfort of people with chronic illness Prevention trials to look for better ways to prevent a disease ...

    FAQ last updated 03/15/2016 - 11:44pm.

  6. SL-401 in Advanced, High Risk Myeloproliferative Neoplasms (Systemic Mastocytosis, Advanced Symptomatic Hypereosinoophic Disorder, Myelofibrosis, Chronic Myelomonocytic Leukemia)

    ... hypereosinoophic disorder [PED], myelofibrosis [MF], and chronic myelomonocytic leukemia [CMML]) will be treated with SL-401, which will ... of Grade ≥2 GVHD Patient has uncontrolled intercurrent illness including, but not limited to, uncontrolled infection, disseminated ...

    Clinical Trial last updated 06/06/2016 - 2:11pm.

  7. Health Related Quality of Life and Well-Being

    ... have used HRQoL and well-being to measure the effects of chronic illness , treatments, and short- and long-term disabilities. You may have ...

    Page last updated 06/24/2015 - 2:08pm.

  8. From Bench to Bedside: Why Research is Important

    ... life through supportive care for people with a chronic illness . The U.S. Food and Drug Administration (FDA) has different ...

    Page last updated 03/19/2016 - 12:22pm.

  9. Clinical Trial Basics

    ... the comfort and quality of life for patients with a chronic illness through supportive care . What are some risks of ...

    Page last updated 03/29/2016 - 7:29pm.

  10. Caregiving Advice

    ... by bonds of affection. They are affected by the needs and illness of their loved one and offer support in ways other than on-site ... affect the immune system, placing caregivers at risk for chronic illness , insomnia, anxiety, and depression. Don’t deny or ignore ...

    Page last updated 03/14/2016 - 11:20am.