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  1. Making the Most of Office Visits with Your Specialist

    ... diagnosis and is this the right diagnosis?” With bone marrow failure disease, the diagnosis might be a little murky or unclear ...

    Interview last updated 10/14/2015 - 9:05am.

  2. Organ-Sparing Marrow-Targeted Irradiation Before Stem Cell Transplant in Treating Patients With High-Risk Hematologic Malignancies

    ... and tolerability of using an LINAC based "organ-sparing marrow-targeted irradiation" to condition patients with high-risk hematological ... 11/01/2017 Bone Marrow Disease(s):  myelodysplastic syndromes (MDS) ...

    Clinical Trial last updated 05/03/2016 - 11:29am.

  3. The Five Principles of Standing Up for Your Health

    ... and treatment options. Although a diagnosis of bone marrow failure disease is an unwelcome life event, strong self-advocates ...

    Page last updated 08/04/2015 - 10:01am.

  4. Nursing Education Modules on MDS Disease Management and Patient Education

    ... overlap, diagnostic evaluation (laboratory indices, bone marrow findings, cytogenetics ) MDS classification – FAB/WHO, ...

    Page last updated 04/27/2015 - 2:44pm.

  5. Health Related Quality of Life and Well-Being

    ... to well-being. Even when diagnosed with a rare bone marrow failure disease, you can still work to establish a favorable health ...

    Page last updated 06/24/2015 - 2:08pm.

  6. Clinical Trials Report for September 2015

    ... of Partially Mismatched Related or Matched Unrelated Bone Marrow for Patients With Refractory Severe Aplastic Anemia The main ...

    Page last updated 08/26/2015 - 1:05pm.

  7. PNH Foundation Announces Grants For Patients

    ... Travel and housing fees for PNH patients undergoing a bone marrow transplant. The PNH Foundation recognizes that although there are ...

    Page last updated 04/13/2015 - 1:52pm.

  8. Caring Bridge

    ... touch and support people in your life who are fighting bone marrow failure disease. ...

    Page last updated 04/08/2015 - 2:50pm.

  9. Aplastic Anemia Connection - Research Update

    ... finding cures for aplastic anemia and other bone marrow failure diseases.  We hear that many of you follow ... and management of thrombocytopenia in bone marrow failure from the International Journal of Hematology.  ...

    Page last updated 02/14/2014 - 1:05pm.

  10. End-of-Life Resources

    ... on providing answers to your questions about your bone marrow failure disease. We are here to offer and connect you to sources of ...

    Page last updated 11/26/2014 - 2:39pm.