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  1. Parents of Pediatric Patients

    ... Whether you've just found out that your child has a bone marrow failure disease, or you have been managing your child's disease for ...

    Page last updated 03/27/2018 - 4:16pm.

  2. Selinexor (KPT-330) in Older Patients With Relapsed/Refractory AML (SOPRA)

    ... 06/01/2017 Bone Marrow Disease(s):  acute myeloid leukemia (AML) ...

    Clinical Trial last updated 04/17/2018 - 1:51pm.

  3. Patient Education Council

    ... living with aplastic anemia , MDS, PNH or another bone marrow failure disease. Review by the PEC provides patients and their ...

    Page last updated 04/10/2018 - 3:39pm.

  4. Marrow Community

    ... is a new, secure, online community for bone marrow failure patients and their families. It is sponsored and run by the ...

    Page last updated 04/04/2018 - 9:26am.

  5. Diagnosis and Treatment of Aplastic Anemia

    ... aplastic anemia (AA) is a rare, life-threatening bone marrow failure (BMF) disorder that affects patients of all ages and is ...

    Research Article last updated 01/30/2018 - 10:53am.

  6. Danielle Townsley, MD, MSc

    ... investigator on multiple clinical trials within the bone marrow failure program at the National Heart Lung and Blood Institute ...

    Bio last updated 03/19/2018 - 9:11am.

  7. Resources to Help

    ... RESOURCES . VETERAN RESOURCES . BONE MARROW TRANSPLANTATION RESOURCES . END OF LIFE RESOURCES . ...

    Topic section last updated 02/22/2018 - 9:51am.

  8. Greater Boston Community Connection Support Group Summer Bash

    » Community Event: Sunday, July 29, 2018 - 10:00am to 12:00pm

    ... Street in Beverly, MA. At the upcoming meeting, bone marrow failure disease patients and families will connect with each other, ...

    Community Event last updated 01/22/2018 - 1:22pm.

  9. Greater Boston Community Connection Support Group

    » Community Event: Sunday, December 23, 2018 - 10:00am to 12:00pm

    ... Room on the first floor. At the upcoming meeting, bone marrow failure disease patients and families will connect with each other, ...

    Community Event last updated 01/22/2018 - 1:17pm.

  10. Greater Boston Community Connection Support Group

    » Community Event: Sunday, November 18, 2018 - 10:00am to 12:00pm

    ... Room on the first floor. At the upcoming meeting, bone marrow failure disease patients and families will connect with each other, ...

    Community Event last updated 01/22/2018 - 1:17pm.