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  1. Professionals

    ... symposium will provide an in-depth and up-to-date review of research related to the biology, prognosis, natural history, and therapeutic ... results, and identify the highest-priority directions for basic and clinical research to advance the field. Session ...

    Page last updated 08/15/2018 - 1:04pm.

  2. Professionals

    ... activity will provide an in-depth and up-to-date review of research related to the biology, prognosis, natural history, and therapeutic ... results, and identify the highest-priority directions for basic and clinical research to advance the field. Session ...

    Page last updated 08/15/2018 - 1:02pm.

  3. Optimization of therapy for severe aplastic anemia based on clinical, biologic, and treatment response parameters: conclusions of an international working group on severe aplastic anemia convened by the Blood and Marrow Transplant Clinical Trials Network.

    ... in March 2010 to define the most important questions in the basic science, immunosuppressive therapy (IST), and bone marrow ... and propose initiatives to facilitate clinical and biologic research. Key conclusions of the working group were: (1) new patients should ...

    Research Article last updated 07/20/2018 - 5:14pm.

  4. Aplastic Anemia & MDS International Foundation: Bone Marrow Failure Disease Scientific Symposium 2014

    ... The pathogenesis of these diseases is very heterogeneous. Research efforts have been made all over the world to improve the basic knowledge of these diseases. The Aplastic Anemia and MDS ...

    Research Article last updated 07/20/2018 - 5:15pm.

  5. Paroxysmal Nocturnal Hemoglobinuria (PNH)

    ... and chemicals your body needs. What are the 3 Basic Types of Blood Cells? Red blood cells (RBCs) are also called ... help people with PNH live longer. You may have seen older research saying that patients with PNH live an average of 15 to 20 years, but ...

    Page last updated 07/20/2018 - 5:15pm.

  6. Health Care Team Players: Meet the Nurse

    ... of health care professionals. Some RN’s are involved in research.  Bone marrow failure patients may have advance practice ... nurses (LPNs), complement the healthcare team by providing basic and routine care under the direction of an RN, APRN, or physician in a ...

    Page last updated 05/07/2018 - 12:28pm.

  7. Professionals

    ... families. MDS Clinical Research Consortium AAMDSIF is the administrator of the MDS Clinical Research Consortium (MDS CRC), a unique collaboration of six ...

    Page last updated 05/03/2018 - 2:28pm.

  8. As Patient Advocate, Emma Makes New Friends

    ... failure does not carry a dollar value. I continue to research and stay up to date through AAMDSIF so when it’s needed, I can do ... point, we gave the NIH staff our permission to discuss our basic info with any future patients and families so we could offer them support ...

    Patient Chronicle last updated 04/26/2018 - 9:25am.

  9. Sicheng Wen, MD, PhD

    ... Original Research Center:  Rhode Island Hospital ... research grant will give us an opportunity to address novel basic mechanisms of MSC-EV healing effects and open exciting possibilities for ...

    Grant Recipient last updated 01/05/2018 - 1:09pm.

  10. Foundation Update - April 2016

    ... Symposium: Experts Debate and Discuss the State of Research and Treatment “This symposium was the best one ... controversies, and recommend promising directions for future basic and clinical research . During these two ...

    Article last updated 10/09/2017 - 2:57pm.