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  1. The Transplantation Procedure

    What medical tests and exams happen before a stem cell transplant ? Your doctors will want to make sure you're healthy enough to have a stem cell transplant. They also will want to find out whether you h...

    Page last updated 05/14/2015 - 10:39am.

  2. Resources for Parents

    ... with bone marrow failure diseases such as aplastic anemia , MDS, and PNH, and for the people who care about them: their family ...

    Page last updated 11/12/2014 - 9:46am.

  3. Regis Peffault deLatour, MD, PhD

    The role of Unfolded Protein Response in PNH Original Research Center:  National Institutes of...

    Grant Recipient last updated 05/14/2014 - 3:41pm.

  4. Interviews with the Experts Pioneering Quality of Life Research for MDS Patients

    ... Education Topics:  aplastic anemia aplastic anemia treatments ...

    Interview last updated 04/03/2014 - 2:13pm.

  5. Clear Communication with Your Provider

    Today, limited appointment times, overwhelming and confusing volumes of information available on the Internet, coupled with the stress of having a rare disease diagnosis, might mean patients don't always get the an...

    Page last updated 04/30/2015 - 3:15pm.

  6. Matthew Debono Memorial Scholarship Program Frequently Asked Questions

    ... at Indiana’s Wabash College when he was diagnosed with aplastic anemia . He regretted not being able to complete his college education so he ...

    Page last updated 02/26/2015 - 2:11pm.

  7. Interviews with the Experts Transplantation & GVHD: What Patients Need to Know

    ... transplantation considered a treatment option for many aplastic anemia , MDS or PNH patients? Hematopoietic stem cell transplantation ...

    Interview last updated 09/30/2014 - 11:07am.

  8. Nurse's Corner Spring 2015: Patient Advocacy – Is There a “Magic Formula?”

    Like many of us, I’ve been told that I’m a great advocate for my patients. But what does this really mean?  How does one articulate what nursing advocacy is?  Is there a “magic formula” for being an advocate? In...

    Page last updated 04/23/2015 - 10:52am.

  9. MDS and MDS/MPN: Past, Present, and Future 2014 American Society of Hematology (ASH) Satellite Symposium Summary for Patients and Families

    ... includes the provisional category of refractory anemia with ringed sideroblasts associated with marked thrombocytosis ... Francisco to explain the most important new research on aplastic anemia , MDS and PNH. These physicians are AA&MDSIF Medical ...

    Page last updated 03/13/2015 - 5:00pm.

  10. Luis Batista, PhD

    ... suffering from dyskeratosis congenita and aplastic anemia , two severe forms of bone marrow failure . These patients ...

    Grant Recipient last updated 06/09/2015 - 9:22am.