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  1. Coordinated Care: MDS Research and Treatment Centers and Community Hematologists Work Together for Complete Patient Care

    What does the term “coordinated care” mean, and what advantages may it offer for MDS patients? There is really no formal, widely accepted defi nition or model for this term. But for most, the term “coordinat...

    Interview last updated 07/23/2012 - 4:56pm.

  2. PNH Research and Support Foundation Donations

    Make a tax-deductible gift to support the work of the PNH Research & Support Foundation TODAY.  Your gift will support research, patient education, and support services. Remember a loved one, celebrate a...

    Webform last updated 09/23/2014 - 10:51am.

  3. Lois Gaynor

    ... in tribute to her daughter who lost her battle with aplastic anemia in 1977 at the age of 15. ...

    Leadership Award last updated 07/22/2016 - 1:21pm.

  4. Know Your Options

    ... our in-depth disease and treatment content about  aplastic anemia , MDS and PNH .  Request a patient information packet from ...

    Page last updated 05/02/2016 - 11:50am.

  5. Iron Chelation Therapy

    ... is removed, some iron is removed too. If you have both anemia (low red cell count) and iron overload, you cannot have phlebotomy. Patients with both anemia and iron overload need chelation therapy to remove the iron. Iron ...

    Page last updated 01/20/2015 - 4:40pm.

  6. Clinical Trial Basics

    ... Without research studies on children with aplastic anemia , the healthcare team may not have the level of information needed to ...

    Page last updated 01/20/2015 - 4:58pm.

  7. Clinical Trial Basics

    ... Without research studies on children with aplastic anemia , the healthcare team may not have the level of information needed to ...

    Page last updated 01/20/2015 - 4:46pm.

  8. A Pilot, Phase I/II Study of the Amino Acid Leucine in the Treatment of Patients With Transfusion-Dependent Diamond Blackfan Anemia (LeucineDBA)

    ... Bone Marrow Disease(s):  aplastic anemia Phase:  ...

    Clinical Trial last updated 04/28/2016 - 8:40am.

  9. Forma de registración

    ... es el diagnóstico primario del paciente? * Anemia Aplasica Síndromes Mielodisplásicos Hemoglobinuria Paroxística Nocturna ¿Cuál es su relación con la anemia aplásica, los SMD o la HNP? * Paciente Padre ... Apellido ¿Cuál es su relación con la anemia aplásica, los SMD o la HNP? Paciente Padre Esposo/pareja ...

    Webform last updated 05/10/2016 - 11:42am.

  10. Phase IIA Open Label Study to Evaluate Efficacy and Safety of BL-8040 Followed by (hATG), Cyclosporine and Methyprednisolone in Adult Subjects With Aplastic Anemia or Hypoplastic Myelodysplastic Syndrome

    ... Bone Marrow Disease(s):  aplastic anemia Associated Drug(s):  ...

    Clinical Trial last updated 04/26/2016 - 11:45am.