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  1. Success Tips for Principle 1: Build a Strong Healthcare Team

    ... and potentially life-threatening illnesses like aplastic anemia , MDS and PNH, it is often helpful to have a mental health ...

    Page last updated 02/25/2015 - 11:22am.

  2. New therapeutics for myelodysplastic syndromes

    ... respectively) will prove effective in improving anemia -related symptoms in patients with lower-risk MDS. ...

    Research Review last updated 05/02/2016 - 9:28am.

  3. Eirini Papapetrou, MD, PhD

    ... blood production. Patients with MDS can develop severe anemia and in some cases leukemia also known as AML. But which genetic ...

    Grant Recipient last updated 09/08/2015 - 8:28am.

  4. ASH 2012 - Reviewing MDS Progress from Research and Clinical Perspectives

    Were there any presentations at ASH 2012 on the clinical aspects of MDS that you think patients might find particularly interesting? There is some evolution in the classification systems used for MDS. For y...

    Interview last updated 02/07/2013 - 1:28pm.

  5. Nurses' Column October 2014 - Fatigue Education for the MDS Patient

    ... that may compound their fatigue:  low blood counts ( anemia ), emotional stress, pain, GI issues from chemotherapy , lack ...

    Page last updated 10/24/2014 - 10:40am.

  6. Self-Advocacy Resources

    ... MDS, go to cancer.gov . To learn more about aplastic anemia , go to nhlbi.nih.gov . Patient Advocate ...

    Page last updated 02/26/2015 - 3:38pm.

  7. ASH 2012 - Reviewing MDS Progress from Research and Clinical Perspectives

    We hear that there is increasing interest and research in the role that genes and genetic mutations have in affecting the course of MDS. Were there any studies of particular significance in this area? Yes, ...

    Interview last updated 02/01/2013 - 4:22pm.

  8. Clinical Trial Basics

    ... Without research studies on children with aplastic anemia , the healthcare team may not have the level of information needed to ...

    Page last updated 03/29/2016 - 7:29pm.

  9. Principle 1: Build a Strong Healthcare Team

    ... find an expert near you who has experience with aplastic anemia , MDS, or PNH. You may need to go out of your area to visit an ...

    Page last updated 05/12/2015 - 9:00am.

  10. Recommended Reading

    Caregiving And Thou Shalt Honor: The Caregiver's Companion, edited by Beth Witrogen McLeod, 464 pp, Rodale Press, 2003.  A complete reference for family caregivers, edited by the founder of the N...

    Page last updated 05/07/2013 - 1:41pm.